Why I believe some clinicians struggle diagnosing dementia…….

This week I’m changing Gp practice. My daughters don’t like my Gp and I don’t like their chemist. I got on well on my own before they ‘tried to help’. I’d go on line, in my own time, re order my perscription, collect the perscription and then collect my tablets. This happened every 2 months – perfect. Then the chemist got involved. First he wanted to put my tablets in blister packs, which for some are very useful, but not when you take trial tablets and they insist on me taking Donezepil in the evening, which has never worked for me.
So then they suggested I let them order my perscription and for me simply to pop in and pick it up – no need for me to do anything but pick it up – sounded perfect so I agreed……..bad move…..
The first time I went in there was a problem finding it and then only one months supply – oh yes, I now have to go in every month. Then each month since there’s been so much hassle. It’s never there. I have to explain each time that it was their suggestion. I tell them where they can find it under the counter but they’ve never believed me and they go through the whole search process each time before finding it where I said in the first place……..very stressful.

So last time when it happened again, I decided I’d had enough of the stress and I’ll change practices.

I’m convinced some GPs have a problem with diagnosis and recognising dementia especially when they havn’t known the person for long and especially if their special interests lie elsewhere. Since moving, my new Gp never met me as I use to be. We often meet clinicians once things have started to change and sometimes later so my Gp has only met the person I am now. It’s very frustrating for us when clinicians don’t understand, especially Gps that may not have known us before dementia. I think this is why its such a problem with my Gp.
I think that’s why there’s so little understand of all the variety of dementias

We’re nowhere near having discovered all the different types of dementia. When you’re diagnosed with cancer you very clearly have a specific type. With dementia, diagnosis is often guess work and you’re slotted in where you fit in most with current findings. I was told Alzheimers then saw my notes saying Mixed dementia.
I think in 10 years time we will have many more diverse and accurate ways of picking up the subtleties of dementia. But to do this clinicians will have to keep up with the fast pace of discovery if they’re not to lag behind, which will throw up more challenges for people such as Gps unless they have a special interest.

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About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

7 thoughts on “Why I believe some clinicians struggle diagnosing dementia…….

  1. I enjoy reading about your journey. I have always thought I would have “fit” better into medicine years ago when the community doctor came to your house. I wish all docs could really know their patients. I embrace the philosophy in the movie “Patch Adams” – holistic care for the patient. Thanks for sharing.

    Liked by 1 person

  2. All too like my own experience. We are the people who know how we feel after taking the drugs. I. often feel like a zombie, and just sit staring into space with no energy to do anything Sometimes I just snooze for ages.

    Liked by 1 person

  3. Thank you once again Wendy for your very astute observations. My husband was finally diagnosed with vascular and mixed dementia in 2011 aged 64 after 3 years of going backwards and forwards to various Memory Clinics. We didn’t know, at the time, that our original GP was paid to refer us to the MAC clinics and that they didn’t actually “talk ” to other services or our GP until after he retired. We missed out on a lot of things , including a proper diagnosis because of this Our new doctor is kind, considerate and concerned about our well being, we are so lucky. I am on first name terms with our Lloyds chemist team and they also always go out of their way to help. I hope you get the same service when you change your GP, it’s what you deserve. I often read your blogs and think you are a very inspirational lady . Take care and keep on doing what you are doing x

    Liked by 1 person

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