I’ve written many times about the need to keep ‘doing’ with dementia. You stop, and within a short amount of time, you’ve forgotten how to do that simple task……for me, at the moment it takes a couple of weeks of not doing something before I start to get in a pickle…
That’s why the Christmas break always comes with a health warning as routine goes out of the window…..
I thought I’d covered most angles this year……typing poetry, trundles round the village taking piccies……but I hadn’t banked on dementia sending me a curved ball…..
Of course, I hadn’t travelled on a train for a while, or booked a cab to pick me up…..
So when my keyboard on my iPad stopped working, I had to go to the Apple store in Leeds….I booked the cab as usual, no problem there…..but when we got to the station it came as a huge surprise that I had to pay her!!😱🙈🙈……I usually have the right money in my glove already sorted but I had to faff about trying to find my purse……even the taxi driver commented how I wasn’t as organised as usual……
The train times have also changed and it was so hard to work out what time train to get back and work out which village bus I would get….the numbers just jumbled in my head…I’d also forgotten the existence of my sunflower lanyard that might have saved me the hassle of explanation when I needed help…🙄
Once I got back home with the keyboard, it also took a while to get use to…..I’d been without it for more or less a fortnight so had been using the keyboard on the screen…slowly…. So when I fitted the new one I just stared for a while thinking ‘ok, so what’s next’….then luckily just typing brought it back to me, but it took a while before all the words made sense and it was natural again…so many of the keys seemed to be in a different place 😂🤣
One thing I’ve never done in my life before is gone to bed and left the TV still on and entertaining itself…..but that also happened the other night. I don’t sleep much and could hear a TV somewhere but assumed it was next doors humming away. Once 2am came it was still rambling away and I thought next door had gone to sleep sat in front of it….it was until I got up for the loo that the talking became a tad louder 😳. I hung over the banister and sure enough,,,it was my TV!!!!!…I can only think that I’d gone out of routine of what I usually do l before I go up to bed, got distracted in some way, and simply left it talking to itself..🙈
Changing abilities comes hard, especially when you notice them happening. Many don’t notice, of course, or they don’t intuitively associate it with their dementia. The consequences of not sticking to ‘doing’ are quite frightening as you don’t even know the ability has become detached from you until you try and do it again…….it’s a fine balance and juggling act that we have to play when living with dementia. Some are aware of the game, some sadly aren’t…..even I become unaware sometimes……..and other times strange things occur without me even realising ….
I’ve still another quiet 2 weeks to get through before my calendar really comes alive, so I just need to find ways to ‘keep doing’ or getting back into the swing of things will be harder….