Update on meeting with NHS Employers

You may or may not remember, but when I was diagnosed last year I wrote a blog about the lack of support I found in the NHS – the very place I thought I would be sure to find advice about continuing to work well with dementia. As a result of this I approached our Director of HR, Dean Royles, about the lack of support available for our staff at St James Hospital. He put me in touch with NHS Employers.

Well, today we had our first meeting. I met with Ruth Warden and Jen Gardner and it was very positive. I came out hopeful that something would be put in place as they were full of enthusiasm to get it right. We are now planning to work together (brownie point for including someone with dementia in dementia related plans) to bring about awareness and raise the profile of the need for support. I’ll be helping to contribute to their design for documents to help employers support their employees.

We will be developing two strategies  -one to help employees with dementia or symptoms of dementia and the other to support carers juggling work and caring.

Head now full of ideas, so must go and empty brain into iPad before they escape……….





About wendy7713

On the 31st July 2014 I was diagnosed with Young Onset Dementia. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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