Well after yesterdays feeling out of my comfort zone, I knew today I’d be right at home as it was my monthly visit to Minds and Voices…….a new couple had emailed me asking if they could come along and I always love meeting new playmates……
It’s that time of year when the mornings are dark. The clocks havn’t gone back yet, so it’ll be getting even darker for longer soon. But it was dark as I got up and showered ready for my 07.25 taxi pick up. I was taking calendars again as I hadn’t taken enough last time. I’m fast running out and don’t think I’ll be ordering any more. I’ve already ordered an extra 100 to the original amount and its them that are now nearing the end. My lovely village shop agreed to start selling them for me last week to make it easier for some villagers to get hold of one.
I was going through the village Facebook page when I saw this wonderful piccie
The caption read……
“The lads thought it might be a nice idea to sleep under the stars in there Yorkshire tea tents with tea bag pillows 😂”
One of the villagers always makes us chuckle as he sets up action men in different situations and I thought this one was priceless…..I even put it on Twitter for Yorkshire Tea to see and they replied saying “They approve” 😂…
Anyway…..I was so snug going through my morning routine that I didn’t leave myself enough time to get my stuff ready. Before I knew it, the txt alert came through to say my taxi was outside 😳….then my tizz started, rushing around getting absolutely nowhere 🙄…..coat, bag, stick, outside, back inside, mask, back outside, not quite knowing if I was coming or going 🥴….I’m just not used to early morning starts of having ‘to do’……
Dropping me off in Saturday market, I finally had time to amble and take piccies to get me back on track
The flower boxes near the bus station had been newly planted with winter pansies, one of my favourite simple flowers
I always think they have individual faces. I’ve thought this since a child as I watched the seed pods open and the tiny seeds scatter out ready for new plants the following year
I always think back to those times when I see pansies and always have them in my garden…
Not long to wait before the bus arrived and we were on our way. It was a very misty murky ride over the wolds – I wished the bus windows had been cleaner as it would have made nice photos, but sadly not today…
I suddenly became overwhelmingly tired and needed to close my eyes……I sat there trying to think what that was all about and realised it was the after effects of yesterdays talk suddenly catching up on me……it can be so exhausting having dementia 🙈……
Once in York, I trundled through this ancient city. so many of the churches have unusual towers like this one
Crossing Lendl Bridge, the rowers were either just setting up or just having finished 🤔
I felt a bit ‘not quite with it’ as Damian and Monica picked me up outside the station and needed a few minutes to get back down to planet earth. Damian had calming music playing in the car which was wonderful.
As we arrived, Anna was already there getting things under way. We were expecting yet more new lovely people, so today, for the first time, we planned to split into people living with dementia group and a supporters group. We’ve never had to do this before and it will seem strange to some. However it will be soooo beneficial for everyone.
People started to wander in, hugs, kisses and laughter suddenly filled the room…..😍
By the end people had all arrived………we were bigger than we’d EVER been
It was soooo lovely to meet so many new people….but it was quite overwhelming!!
After the half an hour of faffing we went our separate ways – people living with dementia in one room in a circle where hopefully people could hear better.
I asked if we could find out about ‘hearing loops’ that you see about in some places. Havn’t a clue what they are but they might be useful for some as it’s a very echoey room…….
And supporters in another room
I actually think we were still too large to make it possible for everyone to hear and feel part of the discussion. We needed two or even 3 groups to allow the quieter ones to feel at home and confident……me thinks we need to get our thinking caps on as to what can be done….a lovely problem to have though!
Our resident friend and artist Alun Kirby came and sat with us…..
We were handed round a leaflet from Older Citizens York, to see what we thought….the only thing we didn’t like was the italics in the speech bubbles – they were too hard to read. Hopefully they’ve asked us BEFORE they’ve gone out….🙄
We then moved onto our research “Living Alone versus Living as a couple”…..we were one of several groups funded by the National Lottery…..we wanted to inform Gp’s and other healthcare professionals what they needed to ask people as both those living alone and those in a relationship have different needs…….our research was received really well by the Lottery people. we just need the same to happen in the medical world….
Alun then told us he is hopubf to do a piece of work with us before he goes to New Zealand……capturing our thoughts on the value of Minds and Voices and what it means to us. Over the last 3 years he’s been writing down when we say something about the value of peer support. From these quotes he’ll create a piece of work that will hopefully be displayed in the library.⭐️
Then we spoke about our course – A Good Life with Dementia course –created and delivered by people living with dementia to those newly diagnosed……. head of Yorks mental health older peoples department has asked for costings for us to run a couple of courses here in York…..which may mean they actually refer people this time…..so that’s brilliant news.
Damian then talked about arranging a jolly to Beverley! Me and Bob helped deliver the Good Life Course to people in East Riding and those people are now meeting regularly just like us, so we thought it’d be a good idea to meet up with them in Beverley. Well that’s fine for me as I’ll be able to walk there!!
It was at this point where there seemed to be a natural break for lunch…..and also time for me to go. The rain falling outside took me by total surprise but the bus soon arrived. Umbrellas were up everywhere, even on the pleasure boats as they passed under the whirlpool bridge
Even I found it difficult today and almost fell asleep on the bus 😳….luckily the windscreen wipers brought me back to the land of the living.
A short wait in Beverley and my village bus pulled in…..cold and tired, I was ready for a cuppa which is just what I did as soon as I got in……..trawling through my emails and trying to catch up on the day, I noticed one email stand out……someone had emailed asking for 10 calendars 😳….and emailed back to check it wasn’t a typo…..but the response came back that yes, if I have them they’d like 10 to send instead of Christmas cards ☺️……how wonderfully generous and kind is that ☺️ and it now means my stocks are diminishing quickly as I’m nearing the end of my last box…..😇