Category Archives: media representation

Charity Film Awards…..

Ages ago…..must have been last year but not really sure🙄….the Alzheimers society sent an amazing duo to capture me on film. The very talented Nicola Leddy was behind the camera and put the film together……anyway, it was nominated for a Charity Film award. Apparently I asked people to vote 🙄……….well the good news is…….

IT HAS REACHED THE FINAL!!!!!!!

Nicola emailed me the good news and I had to ask her to send me a link to remind me what we’d filmed🤪……..

The new favour I now need to ask you all is to vote again as there’s a ‘People’s award’ that any of the finalists in any category can win.

Me and Nicola are going to the award ceremony in London next month. What I hadn’t realised when I said ‘yes’ was that it was a ‘black tie’ affair…….😳 ……..I don’t do posh…..I can’t do posh………so we agreed to be the ‘rebels in the crowd’ and dress as we felt comfortable. Considering I only have a certain set of clothes you certainly won’t be able to miss me.🤣

Anyway, I said I had a favour and here it is. If you like the film could you vote for us again pretty please? Here’s the link….

https://www.charityfilmawards.com/videos/somebody-i-used-to-know-wendy-mitchell

Thank youuuu…..🙏🙏🙏

Another day in the Surreal world…..

A super silly o’clock start yesterday for another surreal day in London…….but what a wonderful day I was heading towards……I know all this won’t last so I just enjoy each moment.
The lovely people at Bloomsbury had me down for 3 interesting outings.
The first to be on BBC Woman’s Hour, the second for an interview with AgeUK and a final one on Magic Radio.

The article in this weekends Sunday Times magazine, about my book appears to have gone down very well if Twitter was anything to go by! Apart from a few inaccuracies it was a lovely article thanks to journalist Decca Aitkenhead. A strange world I’m living in at the moment but won’t last so will enjoy the moment.

Anyway, so Round 20 started yesterday. The taxi man was super early for the first train of today. So at 5.30am I was heading off to the station 😴…..lots of other weary early travellers joined me on the platform and we all sleepwalked onto the train….

But it was a beautiful morning as we trundled past the Humber.

Emma and Kate were meeting me at Kings Cross so we could all share a taxi to the BBC for the Radio 4 Woman’s Hour programme…..it still always amazes me how long it takes to drive a couple of miles in London🙈

We arrived at the BBC to find mega security but we were soon through and taken upstairs and met by the same smiley producer who had FaceTimed me originally. I was then taken straight into meet Jane Garvey, the presenter, clutching my cuppa tea which they had ready and waiting – ha!

Jane Garvey was so lovely and so kind. We chatted while the 10 o’clock news was on and before she introduced the programme, as I was first on. Apparently she spent 12 minutes chatting to me about this that and everything. Their Twitter feed went mad ……obviously I havn’t a clue what we spoke about as I’m typing this at lunchtime and it’s already disappeared. I just know I had a lovely time. I then made a short video to go on their website, before seeing Jane again at the end of the programme to record a podcast both of which were a bonus.

You can download the programme  here: Think I’m at the beginning and about 40 mins (I think!)

https://www.bbc.co.uk/programmes/m000356z

don’t know if this one is any different or with added bits – did try and compare the 2 but got in a right pickle 🙄

https://www.bbc.co.uk/sounds/play/m000356z

Once I was back in the cab, I tried to get through the hundreds of tweets, only to have one special one pointed out to me, sent by singer and actor Will Young…..how amazing ❤️

Back at Bloomsbury, there was a chance for a catch up and a cuppa before heading downstairs for the next interview with James Hickie from Age UK. He recorded our interview and that should be available today I believe. We spoke for about 30 minutes I think…..once again, no idea what we talked about now, but he was very nice.

you can read the interview here….

https://www.ageuk.org.uk/discover/2019/march/wendy-mitchell-on-life-with-dementia/

Back upstairs for a final cuppa before heading to Magic Radio. I was sat with all the lovely staff but they’d been given instructions to leave me In peace😂 wonderful to be sat amongst all the publicity people and be surrounded by books, including mine! And look at these amazing chandeliers!!

So time for the last interview. We got the taxi to Magic Radio, which happens to be near the BBC where we were this morning! They’ve introduced a new slot about books and my book is their Book of the Month for March!

We arrived and were met by the producer who took us up to presenter Emma, who was very smiley and nice.

My cuppa tea arrived and then we started recording.This one was pre recorded so not sure when it will be on but again, we think, this week. If I manage to keep up with everything I’ll put links on at some point this week on a different blog. We chatted and laughed for about 30 minutes and Kate had to ask the taxi to wait😳….but just enough time for more piccies.
I realised I did the whole interview in my coat and only took it off for the official piccies at the end😳 Well I’ve had my coat on and off so many times today I probably didn’t know I was wearing it 🤣

Finally went back to Bloomsbury to pick up my stuff before a nice walk in the fresh air and sunshine back to Kings Cross.

The lovely people at Bloomsbury always look after me well and make sure I have everything I need – meaning cuppa tea on tap 😂. So today Emma, Kate and Hannah looked after me perfectly. Couldn’t do all this if they didn’t look after me…….makes sooooo much of a difference to my day.

Back to normality and the real world once I got back to Kings cross to see all trains delayed…..including my own 🙈😳🙄🤯

What a day…….I really am very lucky. Exhausting it might all be and yes the banging head was very much in situe come the afternoon, but What’s the alternative? To sit at home with dementia as my only companion? I don’t think so.
As I’ve said many times before…..I’d rather die of exhaustion than dementia……..

Visitors to my home………..

Yesterday saw the publication of my paperback and on World Books Day too……how amazing❤️

I had two interviews, and a FaceTime but this time all in the comfort of my home….and looking at the rainy windy cold weather outside, it was a good job…..also because I still had the banging head from yesterday……🙄

The first was from the local Radio station, BBC Radio Humberside. Phil White, the Saturday breakfast show host, had contacted me after reading about my Skydive and wondered if I would go into the studio on Saturday morning to talk on his programme……mmmmm well hopefully I’ll be flying like a bird that morning out of an aeroplane. So he agreed to come to my house yesterday morning and record the short interview instead.

Phil arrived right on time in the pouring rain🙄…..I don’t think I’ve ever been on Radio Humberside before so he didn’t know me and seemed a tad taken aback by the paperback lying on the table and the scrabble board that I’ll be playing with the Financial Times a few hours later….. But he was lovely and didn’t pretend. Our chat included me talking about my book in the few minutes we recorded as well as about the Skydive for Young Dementia UK.

I always like it when people see me for the first time. You can see the seeds being sown about dementia right before your eye…….I did forget to take a piccie though🙈

So the morning came and went and before I knew it 1 o’clock had arrived and the knock on the door lead to the arrival of Harriet and Tom the photographer. They were from the Financial Times. They Have a piece where they’re interviewing people while doing their favourite hobby. They’d asked me if I would have a game of scrabble while I did mine. Scrabble is part of my morning routine, although I play it on line so I did wonder how it would work playing on a board again.

The aim was for us to play a game of scrabble while talking about my book……Tom decided the conservatory had the most light due to the grey rainy day outside. He even had an amazing camera with actual film inside ….none of this digital lark…..😂

They were the nicest friendliest people and boy did we have a laugh. Bets were on at Bloomsbury as to who would win🤣 and the cheating probably started pretty quickly…..although I think we called it ‘House rules’ – my house my rules 🤣

Tom unobtrusively took photos as and when he saw a good shot……the word ‘competitive’ took on a whole new meaning as delaying tactics were used by asking me a question, Tom wanting a posed photo…..such such fun.Havn’t a clue what we talked about🙄 all I know is ……. Harriet added up the score several times just to make sure………

I’ll let you decide from the piccie who won……I was sad when it was over as we laughed so much!

And here’s the proof……..

Wonderful, such a happy interview……or at least I assume Harriet got the interview she wanted as well😳

The day ended with a FaceTime call with Sophie, producer of BBC’s Woman’s hour. It was a briefing call as I’m due to be on their programme on Monday morning which involves the earliest silly o’clock start but hey ho………

That was another lovely friendly interviewer. I wasn’t typing while taking the call so I havn’t a scooby doo what we talked about except right at the end she said she’d heard I was doing a Skydive on Saturday…….soooo excited ……so hopefully I will do it and be able to talk about it on the programme, who knows!

All have had such smiley faces today and all at home. Smiley, friendly faces make all the difference……….

and now I’ve finished typing this, head banging…. I’ll just close my eyes…..relax……and reflect on what has been a very surreal but wonderful day….❤️……and one of the amazing things that came my way today, was my very own Gif………which I can’t stop watching….❤️…I hope it works on my blog……

A Busy Day in London……..

Yesterday found me up at silly o’clock for a trundle to London. Well, I say I was up….my body was out of bed but my brain had decided it was having none of it…….I was convinced I was going for a particular train and the taxi was coming at a particular time………those were the times today’s brain told me anyway. Good my brain on the day I actually booked the taxi was in working order. There I was meandering aimlessly and getting ready when I saw the taxi lights outsides😳………..early………or so I thought……….Good job my bag was ready and tickets in my pocket as I rushed out of the house. Good job I didn’t make him wait too long for me as I just caught the train🙈🙄

The new tablets are playing havoc with me in a morning. Brain suppressed, ability to think missing. So good job I have automatic mode that trusts my packing the night before, but at least I was on the train. A strange very old train. One where the windows still open 😳 and the customer safety instructions involve a ladder😱. I’m sure the driver stalled the train as we were pulling out of the station. All the passengers looked round nervously laughing……..but it got us to Doncaster where I had enough time for a cuppa tea and time to play solitaire and scrabble to try and open up my head. It didn’t help when I heard the station announcement

“There will now be a series of fire alarm tests……..”😱🤯

Anyway, I digress……it had rained heavily overnight so it was a dull grey start to the day. Only faithful dog walkers were to be seen by the Humber

I was trundling to London to do nice bookie things with Bloomsbury. The first of which was at the Head Office of Waterstones in Piccadilly! I was there to talk to their staff about my book, book shop design and my change in reading habits. What I talk about is always as much as a surprise to me as to the audience as I often write them the week before so they’re new to me by the time I read them🙄

Amazingly the train was on time and I walked to Bloomsbury. I was met by Emma and Hannah who look after me and after hugs and a catch up me and Hannah went in the taxi to the amazingly large Waterstones in Piccadilly, within which is their headquarters.

We were met inside by Peter who looks after all the online stuff and twitter (😊). Apparently they never ask authors into here to speak to managers and members of staff so I was very happy to be there. One manager had come from Horsham I think and the others were local. Peter earned the first brownie point for bringing me a pot of tea and one of the women then earns hers by getting me a chair to put it on.

We chatted for about 20 minutes, during which I rambled about anything and everything to do with m book, including my change in reading habits! One bit I said,

I’ve rediscovered the joy of reading children’s books. The unbelievable detail of the illustrations. Why should children’s books be solely for children, adults of all ages can enjoy them all over again or sometimes for the very first time. ”

It was over in a flash but had lots of questions, none of which come to mind🙄 I signed some of their stock of books ready for tomorrow and then Hannah booked the cab to take us back to the office. I sat quietly in the conservatory for a while with a much needed cuppa as my head was still banging from the morning and we still had a podcast to record😳

I’d just finished my cuppa when it was time for the podcast. The RiffRaff, a podcast that champions debut authors wanted to chat about the process of writing Somebody I Used to Know, and other stuff. We went upstairs and the lovely smiley woman was there all set up. I forgot to write her name 🙈🙄…….but she was sooooo nice.

We talked about this that and everything for about an hour I think 🤔. She was so kind in her comments but obviously I couldn’t type so have no idea really as the detail vanished before I got on the train home where I’m typing this…..🙄. I do remember how smiley and nice she was though and I remember much laughing……😊

Apparently it should be broadcast on march 18th. Here’s their website for anyone interested.

https://www.the-riffraff.com/podcast-2

By the end my head was well and truly still banging. It had had enough. So luckily we’d left plenty of time for me to amble back to kings cross. I thought id just pop into WH Smith’s just in case they had my book early and what were they just putting on the shelves……

Amazing day, despite the head……..☺️

Visit to BBC Radio York……

On Monday morning I trundled into York on the bus to meet with the lovely Jonathan Cowap from Radio York. Jonathan has always been kind to me and invited me on his programme at regular intervals since I was diagnosed 4 or 5 years ago.

I couldn’t remember when I last saw him so searched my blog for the memory and found it was almost a year ago to the day! It must have been at the time of the release of the hardback version of my book, looking at the piccie.

Anyway, this time it was me contacting Jonathan as I wanted to publicise the Skydive I’m doing for Young Dementia UK on Saturday as well as my paperback and luckily he was free to see me.

Monday morning dawned and after Storm Freya battering the land overnight, I was pleased to see the sunshine. I’ve had terrible trouble with a batch of new medication lately, making my mood sink unusually low and feeling very tired so it was nice to see the sunshine to try and keep my head above the waterline.
No taxi needed this morning as we weren’t meeting until 1pm so I could take the village bus into town to catch the bus to York.

I had time to spare so I ambled through the lovely Museum Gardens….

And saw the lovely spring daffodils…..

I didn’t print a map or set my phone to show me the way once I was in York, as I assumed I would just know…….wrong…….. I must have taken a wrong turning and couldn’t work out where to go. However, I never worry in York, as all the shopkeepers are so kind and helpful and soon had me on the right route once more.

Jonathan was stood at the door waiting for me so after a hug and a catch up we went straight into the studio and recorded the piece. I wasn’t typing so listening to what I said will be as much a surprise to me as to you!

It may sound strange but people only see or hear the positive bits of me – they forget there are many struggles they may not capture in a brief interview, simply because I’m happy to be there. In those moments of happiness the struggles fade. Whenever I’m somewhere I want to be with people who are kind, I’m instantly happy, no matter what rubbish has passed my way before then. Once I leave the rubbish takes over again….So I imagine I must always seem the same cheery person when I meet Jonathan as he’s one of the few media people I trust to be kind. And here’s the man himself….

You should be able to hear the interview here – I’m about 1hr 33 mins into the programme…

https://www.bbc.co.uk/sounds/play/p070jz00

The Sunday Times visits me at Home …….

The paperback version of my book is due out in March so interviews and promotion are all starting to swing into action.
Yesterday I had a visit from journalist Decca Aitkenhead. She was interviewing me and Sarah for a piece for the Sunday Times magazine.

Decca and I met at the Hay Festival last year as she interviewed me on stage there. I remember little of the actual occasion but I remembered she was lovely but I had to look to the net for a reminder of her face. I remember the Hay Festival as a wonderful experience, made even more so by my friend Rachel Niblock bringing her 2 granddaughters to keep me company in the alien green room……so my blog told me when I’ve just read it – ha!

My publishers are lovely on these occasions as they also sent me a piccie of the photographer before he arrived as I’ve never met him. He was due to arrive an hour before Decca and get his bit all done and dusted…..

Anyway, Sarah had not long arrived before there was a knock on the door and the photo I’d been sent looked just like the man on my doorstep. He was lovely and his eyes scanned the downstairs for appropriate place to take the photos. I never let photographers upstairs now after last years events where they took photos of anything and everything.

He also drank tea so he must have been nice.

Sarah turned the tables on him and took a piccie of him taking a piccie of me……

As with all things like this, they take a hundred photos to perhaps use just one, but at least we know they’ll choose a nice one as they won’t want a bad one in their paper.🤣

Chris snapped away for about an hour before finally being satisfied and had a cuppa tea. He was just leaving as Decca pulled up in the taxi so perfect timing…..

After hugs and a catch up, Decca started her recorder going and the three of us chatted happily away for over 2 hours😳 before we realised the time! Havn’t a clue now what we spoke about but I remember lots of laughter, smiles and Sarah did wonderfully. We even had time for a selfie of the three of us

Decca only drank water 😳 but I’ll forgive her as she’s such a lovely smiley person……

So this surreal world is appearing all over again. It’s ‘extra’ suduko as the people I meet are a bonus in my week and in the past I think they’ve all been lovely.

This time round, the paperback has a new cover of the 2 most precious people in my life and we’re hoping to appeal to an even wider audience. I’ve been asked to write articles myself for some publications, which is wonderful. All these an added bonus to a life with dementia in tow……..who would have thought, eh?…… more on everything as and when they happen……

A wonderful, if exhausting few hours and when everyone had left, leaving me in silence…I promptly fell asleep……..😴😴

Apparently the article will be in the Sunday Magazine on the 10th March, we think……..ooooo that’s the day after my Skydive!! So let’s hope it’s a nice calm sunny weekend😊

A Lovely Interview on Canada Radio……

I was convinced I still had to record this interview. I was even about to ask when it was going to happen. But then, all of  a sudden it appeared on Twitter……..

I’ve listened to it amazed at the lovely conversation I had with the presenter, Piya. She was so kind.

It was also interesting to hear the sentences and words I used. People listening to it might think me eloquent and fully coherent, but I know I’ve said those sentences and words a thousand times. They appear to be stored, waiting to be released when the interviewer feeds me key swords, as Piya did so beautifully.

At one point I say, “The one person that never let’s me down is me”……I’m very lucky and have been for many years, that I’m happy in myself and it’s been a godsend with dementia.

The programme isn’t just about dementia, it’s about memory in general and how much we can rely on it. A fascinating programme.

Anyway, hopefully this link will work for you from CBC radio. Not sure how long its available. The programme was called Out in the Open. If you scroll under the first picture, it says, ‘Listen to the full episode’ and I’m on at the beginning. And Piya gives a lovely comment right at the end, bringing the listener up to date with the blog I wrote about the interview afterwards.

https://www.cbc.ca/radio/outintheopen/if-memory-serves-1.4945241

or you can just listen to my bit with this link…

https://www.cbc.ca/radio/outintheopen/if-memory-serves-1.4945241/it-s-the-dementia-it-s-not-me-how-this-woman-finds-resilience-in-the-face-of-memory-loss-1.4965179

Recording an Interview for Canadian Radio….

Last week I was asked if I would be interested in chatting on Canadian Radio about Memory.
It was a request from the CBC Radio One program, ‘Out in the Open’. who are interested in speaking to me as part of an upcoming episode on the fallibility of memory, and more acutely, on dementia and Alzheimer’s. They’d asked if I would do a pre interview via Skype video with producer, Debbie Pacheo.

I really don’t like Skype. It’s not very friendly and never works straight away but it was all they could offer as they usually do the interview by phone, which I can’t do. True to form, as the Skype call started, a blank screen appeared; I could hear them but they couldn’t hear me. Then I could see them but they couldn’t see me. Anyway after much faffing, we found each other.

Debbie, the Producer, was lovely and the pre interview seemed to go well and the real thing was arranged for yesterday.

They’d decided to send over someone to my house, to record the sound from this end so freelancer, Lucy Ryan arrived nice and early and then the internet connection decided to play up……..😳🤯….cuppa tea time…….when in doubt, switch off, switch back on again……

While I ignored the red light and flickerings from the little internet box, me and Lucy chatted away. She’d come on the train from Sheffield and, as well as being a freelance audio buff,  taught Chinese students how to speak English at the University …..because she was Irish, I asked if they spoke with an Irish accent, but apparently she has a teachers voice as well as her everyday voice……..☺️

I was due to speak to the host of the programme, Piya Chattopadhyay and was glad to see red become orange and the internet connection come back to life again. Right on queue, the Skype sprung into action and Piya’s face appeared on screen. No technical hitches this time!

She asked if I remembered the detail of the pre interview I did the other day ……..😳………..nope……..🙄……as usually they relied on the person talking about the same thing😶………was never gonna happen. But I knew if she fed me words, that would bring out sentences I’ve said a thousand times before, we’d be ok. If I’m not reading my own words, the interviewer has to know the magic words which will ignite a sentence to appear out of my mouth. That’s why it’s so important for them to have chatted to me or read my book. Otherwise, I’ll ramble about anything. I’ve got a good excuse if it all goes wrong, but they just look incompetent……..🙄

We must have spoken for well over half an hour about this that and everything ……I so wish I could remember most of it but I can’t. I did remember one thing…..Piya asked me whether I trusted my memory. My response was no, and that I have to place a lot of trust  in others…….and we also spoke about the advantages of living alone, as I remember her laughing at my responses……..🙄

Even though I’m typing this straight away after the interview, the detail has gone, vanished……..but hopefully I did a good job. What I do remember is that Piya had a nice smiley face and was lovely to chat to……..apparently, for anyone in Canada, this will air  on January 6th and be up online the Friday before.

Once again, I forgot to take any piccies🤯…..so instead, I’ll show you the Korean version of my book that arrived in the post yesterday just before the interview….…stunning cover design…😍

Looks so weird but beautiful written in their language❤️

Filming in London with my partner in writing…….

Yesterday I trundled down to London to film some videos in preparation for the release of the paperback version of my book……The lovely folk at Bloomsbury had suggested we make 4 – 2 of me reading extracts and 2 of me and Anna chatting away.

So it was then that I set off on a very misty morning. I’d found my planned train had been cancelled – surprise surprise………but luckily Jasmin had booked me an Anytime ticket so I could go on the earlier train as the next one would have made me late…..

As it turned out it was a good job I caught the earlier one………as we became later and later as one issue after another caused delay – the level crossing not working, signals the wrong colour, slow train in front🙄

I was sat on my own until Doncaster but then a business man came and sat beside me. Turns out he was an Insurance Consultant so not the sort of person I usually chat to! But he made phone calls and did some work and then suddenly struck up conversation about Glass Half Full versus Glass Half Empty people – goodness knows why😳 but after half an hour of chatting happily I mentioned my book🙄 and how I felt very lucky to be a Glass Half Full person as this meant I looked for positives to help me cope. Turns out a friend of his had recently been diagnosed with dementia so we had plenty to talk about…….😊
By the end of the journey he’d ordered my book on Amazon……amazing what you can achieve through a simple random conversation☺️

Anyway, me and Anna arranged to meet for a cuppa beforehand for a lurgy hug and catch up.
We went through what we might chat about and had a catch up before making our way across Bedford Square to the offices where we were met by Hannah.

Hanna from Bloomsbury has obviously been stalking me as she told me exactly which top to wear😳😂. It will be shown come spring so we had to be ‘springlike’, which is very hard when Christmas is a coming🤣

We walked upstairs to the office to be met by a lovely cameraman who would be doing the filming. I also remember having lots of cuppa teas and look what they’d made sure they had…..

I recorded 3 readings with the auto queue, which was weird but went well I think before filming me and Anna chatting randomly. We chatted about all manner of things about our writing process, how my book is about so much more than dementia and had lots of laughter and giggles.
Emma and Alexis joined us towards the end but had to leave at 3.30.
On hearing that time I suddenly realised I was booked on the 16.03 train😱, so we had to make a swift exit and Anna walked with me to Kings Cross, both of us huffing and puffing our way through the street. We made it with 5 minutes to spare🤯😰. So quick hug, quick goodbye and I was on my way home

What a wonderful day……..🥰. The only sad thing…..and I didn’t realise until I was on my way home……..was I didn’t take any piccies of people😱 sooooo disappointing☹️


Hardback cover and the paperback due out next year, the piccie being one I took of my gorgeous daughters……☺️

The lurgy is still clinging onto me and has dragged my mood down, but put me in a room full of smiley happy people and I spring back to life that the moments I’m with them. Anna had the lurgy too but hopefully the chemistry between us shone through on the videos

Finally most of you might of already seen this on Twitter or Facebook……. The film I made with Nicola Leddy has been put forward for the Charity Film Awards. So if you have a few minutes to watch it and then vote if you like it, I’d very much appreciate it.

https://www.charityfilmawards.com/videos/somebody-i-used-to-know-wendy-mitchell

TV Recording with my daughter……

I was contacted back in June by local ITV Calendar news to see if I would be available early September for an interview at home. This is sooooo unusual for TV people to book so far ahead as often it’s a last minute booking as topics appear in the news.

However they were aware of it being World Alzheimers awareness month and obviously had plans, which was nice good to hear.

Anyway , yesterday was agreed and the bonus was that Sarah had agreed to do the piece with me. Their aim was to ask about the general stuff – about my dementia and how it affects my life and family, what I do to raise awareness, why I wrote your book, what I do to help my symptoms – all good.

It was a very dull and drizzly day so not very good for filming. We needed the sun to shine really but it wasn’t playing ball…..🙄

Sarah arrived early and the reporter Michael, from ITV Calendar news, arrived soon after and right on time……

As usual, Michael came armed with all the paraphernalia that accompanies a reporter but he was very respectful, setting up and moving things, making a note of where they were.
He was also very smiley and such a friendly person.

Once set up he asked me questioned around my coping mechanisms, the effect on family, my book and all the wonderful opportunities dementia has brought my way. He spent a long time asking questions and made me feel very relaxed. He asked what I would say to others and I’m sure I must have said this many times before but….

It’s a bummer of a diagnosis, but if you look at it as the start of a different life, a life of adapting, it can make the diagnosis easier to handle”

If I say ‘bummer’ the rest of the sentence appears from nowhere. It was strange as I felt the old me next to me yesterday. It was a good day. We often talk to one another but I remember her presence yesterday. The reporter had watched many of the films I’ve already made and fed me key words that generated automatic answers from the automatic filing system in my head. I felt the old me being impressed and saying, ‘Wow, go girl’. As I said, it was a good day.

He then asked Sarah some questions around how we cope as a family and Sarah spoke about the importance we’d placed on talking. She was of course very good, but then I am biased 😊

He finished off by filming various bits of the downstairs – we’d already agreed that upstairs was out of bounds….and 2 hours later he left.

I’m not sure when it’s being aired but they plan to show three reports through the month, one of a couple where the husband is living with dementia, me and Sarah and finally a piece from the Hospital setting. It’s good that they’re doing something as there’s been little on the telly so far for Alzheimers month…..

As I’m typing this I’ve realised something devastating…..I forgot to take any piccies😳 – what happened there Sarah?!!! Instead I’ll put a piccie of Billy who had my company afterwards as I was on Billy duty…😻 hopefully I only fed him once……🙄

So that was in the morning, in the afternoon I had another go with Skype as I had a call with Young Dementia Research Network. Earlier in the year we held our first conference and today we were discussing the next steps and future conference.

Once again I couldn’t get skype to behave. It worked perfectly for all of 30 seconds but then I could no longer see people even though I could hear them and they could see me🙄

We spent over an hour talking, me to a blank screen 😶. We know it didn’t all go perfectly but it was the first and we learnt so much from it. The young researchers who attended had so many wonderful ideas that we want to build on them and include them in the next stage.

We have some very good plans in the pipeline for the future…….the Network is a wonderful resource for anyone that wants to learn more about Young Onset Dementia.

More details of how to join the Young Dementia Network here:

https://www.youngdementiauk.org/young-dementia-network

I hadn’t been anywhere to do either of these but I was exhausted by the end of the day. Maybe it was the Skype that finished me off – the frozen screen meaning I had to concentrate hard on voices for over an hour instead of having the company of animated faces……..