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Hello and welcome to my blog. On the 31st July 2014 I was diagnosed with Young onset dementia. I may not have much of a short-term memory anymore but that date is one I’ll never forget.

Me - 59 years young with my wonderful daughters:)
Me – 59 years young with my wonderful daughters:)

I’m 62 years young, live happily alone in Yorkshire, have 2 daughters and I continued to work full time in the NHS until the end of March 2015, when I chose to take early retirement to enable me to enjoy being me while I’m able. I have never ‘tweeted’, ‘blogged’ or ‘facebooked’ in my life but since I was diagnosed, everything else in my life has changed, so why not this. I hope you find my ramblings of interest.

I started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. Luckily the part of my brain that allows me to type hasn’t broken yet and I find that easier than talking. I have calendars that take care of the future but this blog serves as a reminder of what I’ve done and said in the past – it now serves as my memory. If anyone chooses to follow my ramblings it will serve as a way of raising awareness.

It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we’ve been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we still have feelings. I’m hoping to show the reality of trying to cope on a day-to-day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. Living as well as you can with dementia is all about adapting. Adapting to new ways to enable us to live better for longer with dementia.

I can type as though dementia never entered my world as that part of my brain has not yet been affected, but that often works against me as people question my diagnosis. All I can say is, live a day in my shoes and I’m sure the reality will dawn.

What I want is not sympathy. What I want is simply to raise awareness.

I’m now the proud author of the Sunday Times Best Seller, Somebody I Used to Know, which just goes to show, you should never give up on yourself.

And now in 2022, I’ve released my second book, (who would have thought I’d say ‘first’ never mind ‘second’ 😳) “What I wish people knew about dementia..“ also written with my partner in writing, Anna Wharton.

Click on the ‘Blogs’ tab to see what you’ve missed and then click to ‘follow’ me if you’d like to receive my daily blogs in your inbox.

If you prefer to comment by email please feel free – wendy7713@icloud.com or you can find me on Twitter   @WendyPMitchell

Billy, my daughter's cat - a calming influence in my life. Billy, my daughter’s cat – a calming influence in my life.

And my latest best seller ”What I wish people knew about dementia has also become a Sunday Times Best Seller……two honorary doctorates and two Sunday Times best sellers all since being diagnosed with dementia….just shows hpw you should never give up on yourself no matter what life throws at you ….

1,165 thoughts on “Home

  1. Your book is so inspiring. I am a health care aide at a personal care home in Canada. I work in the dementia unit. I plan to share your book with many people there and hope it helps some to understand who these people truly are that we spend so much time with and what they have already been through on their journey.

    Liked by 2 people

    1. Hi o have recently been diagnosed with alxheimers and my daughter sent me your bog from Australia on whats app I would like to know where can I purchase your books ant the titles and could I add you to messanger. Thankyou in anticipation.

      Liked by 1 person

      1. Of course Judith. You can either get them directly from me by emailing wendy7713@icloud.com or order via Amazon or any other book store. My first was Somebody I Used to Know and my latest is What I wish people knew about dementia. I always advise reading them in order.🤗xxx

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  2. Just finished your second book Wendy. As a retired Psychiatric Nurse with 35 years service I have learned more from your book than all of my studies and nurse practice over them years. For that I thank you most sincerely.

    Liked by 1 person

    1. I have just been diagnosed with Lewy Body Dementia. I’m 80 years old and have been told that I have 2 to 4 years to
      Live. Another Dr. told me that I would live for 6 years. What are your thoughts without visiting me?
      I look forward to reading your books and thank you so very much for your gift in writing them.
      Please take special care and be alert and safe in all yo do.
      Semper Fidelis to Christ first forever.
      Fred Mitchell

      Liked by 1 person

      1. Oh Fred, what a dreadful thing to be told. I was told 3- 5 years 8 years ago 🙄 so just do as I do and enjoy each day and don’t think of the future, plan for it, but then live your life as you wish each day.xx

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  3. Thank you for sharing your story, I have just completed your first book and it has been so informative and it is helping me understand what my Mum has been through. Her dementia is advanced, sadly we didn’t realise what was happening to her as she lives abroad and we don’t see her very often. It now makes sense as to why she started passing the phone to my Dad sometime ago. I shall now start your second book. I have sadly lost my Grandma and Aunt to the disease and now I am loosing my Mum. It has made me think about myself and if I will suffer with the disease. After reading your book I have now signed up to Join Dementia Research. Thank you again, I believe everyone should read them.

    Liked by 1 person

  4. Wendy I have now read both your books, borrowed from my local library. I found what you shared of your experience of living with dementia so candid, moving , interesting and helpful. Thank you so much. I hope that through yours and other efforts we will all gradually come to a better understanding of this condition. You are an inspiration to me. With all good wishes, Sanghadevi

    Liked by 1 person

  5. Hi Wendy I have tried to add you to messanger but with no luck in my search . I am wanting to purchase tour books, but can’t remember which you said to read 1st in an earlier email to you and your reply to me. I await your reply here or on my email many thanks Judith wright.x

    Liked by 1 person

  6. Hello Wendy.
    Thank you for your extremely helpful first book. I have just finished it today, and am about to start the follow up. My journey is relatively new and not yet formally diagnosed. I have been experiencing symptoms for nearly two years (but who can recognise an exact time?). Reading your book has helped me prepare for the time that diagnosis eventuates. Should, perchance it doesn’t I am still glad I have read it. I live in Melbourne Australia, and am soon to turn 62.
    All the best to you and your daughters. Bernie 🙏

    Liked by 1 person

  7. Hi Wendy,

    I think you are inspiring and I’m so glad that I’ve found your blog. Thank you for having the courage to share your journey. My husband and I are trying to launch a new ethos for interacting with those in the later stages of dementia based on our own experience with my Dad. We are called Timeless Presents, and although we are hoping to be a business, our main driver is changing how people in the later stages are perceived and engaged with. Our products are classic toys that have been tweaked and repackaged to appeal to adults and are how we engaged with Dad during those later stages. We would greatly appreciate any comments or insights that you have, whatever your thoughts are. You can find us on Facebook, Twitter and on our website.

    Liked by 1 person

  8. Hi Wendy!

    Having looked at your content, I thought I would reach out to tell you a bit more about MedicAlert and what we are trying to accomplish, as it may be of relevance to you.

    As a charity, we want to encourage more people living with a medical condition or allergy to be more active and join in socially.

    We would love to engage further if this is a value you share.

    Let us know your thoughts and if you would be interested in learning more about us!

    kind regards

    Colette Smith

    Liked by 1 person

  9. Dear Wendy, I’m reading your 1.book and I’m more than surprised how you manage (still?!) your life! And what is possible! It gives so much hope! Thank you so much for outstanding and daring!! Simone from Germany

    Liked by 1 person

  10. I read your second book (‘What I wish people knew about dementia’ in Korean) and I will read your first book. Thank you so much. I learned about dementia from your book.

    Liked by 1 person

  11. Hola! Me encanto el primer libro, lo leí porque conocí a una persona con Alzheimer intermedio y quise empaparme más de esto, lo busque en Google y por cosas de la vida en una feria de libros vi tu libro y dije lo tengo que leer y fue muy educativo, no te alcanzas a imaginar lo que aprendí, muchas gracias lograste el cometido educar 🤗… De corazón muchas gracias.
    Saludos desde Colombia.

    Liked by 1 person

      1. Hi Wendy,

        Thanks for getting back.

        I’m not on facebook or twitter, but not to worry; I’ll just make a point of looking at your blog regularly.

        I’ve just finished your book, the first one, and found it really interesting and positive. I wanted to know how you are now, so will check the blog out.

        All the best

        Alison

        Liked by 1 person

  12. I am reading your second book “What I wish people knew about dementia”. My mother got dementia. I take care of my mother at my home from 2018. My mother does not recognize her family. I want to know what happens in her brain and what she feels. Your book help me to understan her. Thank you!!!

    Liked by 1 person

  13. Dear Wendy, I loved your book “What I Wish People Knew about Dementia”.
    The part “On homes and care homes” inspired me to think about the green space in our residential care home, and to create the improvements together with our residents… Waiting for your feedback and reflection…

    Liked by 2 people

  14. Hi Wendy I have read both your books and found them inspiring but also of practical use. My sister was diagnosed with Alzheimer’s disease August 2020 both she and I have led independent lives my aim is to support my sister’s independence. I think it is almost like being her PA, so that appointments are kept, bills are paid etc. Your second book has been hugely helpful in how I have approached things. After diagnosis the support from the “professionals” has been non-existent. I think there is a bit of a post-code lottery about what’s available. Thank you for sharing your experiences.

    Liked by 2 people

  15. Hello, Wendy

    I’m a Boston-based freelance science writer working on a story for wmnHealth, a research organization dedicated to improving the mental and neurological health of women, transgender women, and gender-diverse people.

    This story, featured on International Women’s Day, will cover how access to services, as well as conversations, around women’s brain health have changed in the recent decades and what gaps still need to filled. Your story is deeply empowering and I’d love to chat with you to learn more, if you’re available.

    Thank you for your time!

    Best,
    Shafaq

    Liked by 1 person

  16. Good morning. I’m Korean. I’m glad to watch about you on TV. You are my role model. I am awkward in English. But I want to express my mind and put my feeling on this blog. Thank you. I want to hug you.

    Liked by 2 people

  17. Loved both of your books. Read your latest book over the weekend. It is inspiring and full of really helpful tips. I had a massive stroke caused by a ruptured brain tumour in 2014 so have an ABI. Many of the points you raise I can relate too. You are truly inspirational and a great activist. There needs to be far support dementia and neuro. Agree with you a 100% on invisible disability and PIPS! So a million thanks for everything you do and keep up the good work as long as you can.

    Liked by 1 person

  18. Hi Wendy, I am eighty nine and am caring for my eighty seven year old wife. I love her dearly despite her diagnosis with mixed dementia. Your second book has taught me so much, and it will improve me as a carer, and also help Dorothy when she reads it. Thank you so much. Ray Hills. byershills@icloud.com

    Liked by 1 person

  19. There aren’t that many of us called Wendy and you and I are both two of those! I’ve started working with a lady with young onset dementia in December 2022 as her PA and as a new career move in my 50’s, it’s opening my eyes and broadening my horizons. She, like you is such a positive woman and fun to be around. Yes, she has her struggles, but is determined to live her life as best she can and she literally lights up each room she enters! She recommended I read your books which are practical, useful and inspiring. Through you we get an insight into how it really feels. Thank you!

    Liked by 1 person

  20. I have just read your first book and found it wonderfully inspiring. It gives such an insight into what people struggling with this horribly debilitating disease struggle with. Such a positive and inspiring role model. Thank you.🙏🙏

    Liked by 1 person

  21. Hi Wendy, love all your photos and follow your blogs with interest, especially when you are up in your beloved Keswick x I’ve read your books and have found some insights that are helpful to me in supporting my husband. He has fronto-temporal dementia and part of that is lack of insight into his condition which gives us different challenges . Like you though, some parts of his brain haven’t been affected so far which makes people think at a superficial level that there is nothing wrong which sometimes works against us too in terms of getting help. Looking forward to more blogs, photos, your next book, and the sunshine you bring with your attitude and take on this most awful of diseases. Sending love x

    Liked by 1 person

  22. I well read your book ‘what I wish people knew about dementia’ , really well read. I will be the one to help my dementia friends. I wish you may be filled with gratitude and joy in each second.

    Liked by 1 person

  23. Hello Wendy, I just finished reading your first book and I am so impressed. I am 44 years old and was diagnosed with Mild cognitive impairment two years ago this year I was diagnosed with early-onset dementia. I have two little ones ages 12 and 9 and a husband. However, I have been numb for the past two years no feeling but just the other night I broke down and I just cried and cried out loud. The realization made me feel sad and scared. However, unlike you, I just feel defeated. Your book inspired me to look forward to this new phase. I just don’t know how. How are you feeling today?
    Maggie

    Liked by 1 person

    1. I was like that at the beginning Maggie, just like that. Then I met someone else who’d been diagnosed many years before me and saw there was a life to be lived. Where about do you live Maggie? I could try and find out what there is for you in your area if it helps? You may have access to Admiral Nurses – specialist dementia nurses who are just amazing and look after the whole family xx

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  24. Thankyou Wendy, all the way from Australia. I read this book in hopes to understand how my grandmother feels. She currently just got diagnosed . I also have lost my other grandmother to it recently. Thankyou for giving me more insight into this. All the best xox

    Liked by 1 person

  25. Hi Wendy! And greetings from Finland. I have just read your book Somebody i used to know. I learned so much from it, and i love to way how you write. Thank you so much! You do a great and important job. I wish all the best for you and your family 💖

    Liked by 1 person

  26. I have just finished reading your first book. It was recommended to me by my sister who has been diagnosed fairly recently with dementia. I found it inspirational. I belong to a Book club, and will most definitely be suggesting that it be read by all.

    Liked by 1 person

  27. Hi Wendy,
    I found your books at the local library and what a blessing. Last week I heard of three friends who have/may have dementia so wanted to find out about it in able to support them on this journey. I know from past experience that you find out way more from a person journeying with a disease than from medical people talking about it. Thank you for sharing.
    Jenny

    Liked by 1 person

  28. Hi Wendy
    Just finished listening to your second book. Fabulous book, well done you 👍 Very insightful and inspiring. Not to mention, quite funny too. I did laugh when your location app placed you in China 😂
    Looking forward to hearing the first book when/if it turns up at our library.
    Keep smiling and snapping away with your camera.
    Cheers
    Mike
    P.S. Have you tried a bungee jump yet? Will your bus pass take you as far as NZ 😁
    Just a thought

    Liked by 1 person

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