I’m re blogging this which I wrote after my mishap before christmas, simply because I was surprised by how many people hadn’t heard of Johns campaign and because lots of people had switched off social media for Christmas. the more I think about it, the more I know it should be used and advertised as being in use, in every healthcare establishment. so apologies to those who have already seen it – I just thought it deserved another outing, especially at the uncertain time we’re living in now……
Following my recent mishap and venture into the current NHS, I’ve been thinking so much of others that just aren’t in as fortunate a position as me…..
I have a voice that’s able to challenge, a daughter who knows the system…..what about those who may have agreed and resigned themselves to the fact that the ‘consultant knows best’….from what the second doctor said, if they hadn’t operated, arthritis would have set into that wrist very quickly and although I wont regain the movement I had, it will be a lot better than if they’d done nothing as the first suggested.
Also its so important for Johns Campaign to be followed in every healthcare setting and for someone to be allowed to be with the person with dementia.
Something so simple. Yes, I know Covid has put extreme pressure on the NHS but not allowing someone else to be there would lead to even more pressure – as we don’t feel comfortable, we then turn into ‘challenging patients’ and we give the wrong answers to some important questions.
Sarah has mentioned loads of things to me that I have no recollection of, like making sure I keep my shoulder and elbow moving as well as my fingers otherwise they’ll seize up. If id have been alone, how much would have gone by and the words left floating in the hospital room instead of in my head?
I’m lucky, ive developed ways to remember what’s being said, but even I missed so much. Someone left alone, as Dory was from the 4 amigos, would be in a different position since her daughter wasn’t allowed in with her. Dory would have still had a bad experience but her daughter would have been there to support and comfort her.
For some unknown reason, I’d forget, each time when asked, that I had an allergy to aspirin and Sarah was there to correct me. They asked me and if alone, I would simply have said no and they’d continue with their questions , instead of Sarah correcting me each time and them giving me a red wrist band to highlight they had to be careful – that could be so dangerous……
Sooo many hospitals report themselves as being dementia friendly
But sooo many now are refusing admission to supporters even at the entrance, as was the case with Dory. Even mine said ‘only patients allowed’, but as soon as we mentioned Johns Campaign Sarah was allowed to be with me. But how many others would not have known to challenge, not had the knowledge, the confidence to challenge someone they see as ‘being in authority’
I was much happier, much calmer and much more content in the knowledge that Sarah was there.
I’ve said it so many times, I’m very lucky to be in the position I am; to be resourceful, to challenge, to have confidence and to have the comforting thought that my daughters will always do the same.
Just how many others are not as lucky as me and who suffer the consequences …😢
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