The one word we never hear from the media…..

During August, it was announced that the football legend Denuis Law had been diagnosed with Mixed Dementia. The press announced is sounding like an obituary …..but he wasn’t dead! However, Law himself then wrote an article for the Guardian… a positive article…he said:

I do understand what is happening and that is why I want to address my situation now whilst I am able, because I know there will be days when I don’t understand and I hate the thought of that right now. In the height of the pandemic I said I hoped that if one positive was to come out of it, it would be that it would make people kinder to each other, so that’s what I am hoping for now.”

You can read the full article here hopefully:

https://www.theguardian.com/football/2021/aug/19/manchester-united-legend-denis-law-diagnosed-with-mixed-dementia?CMP=Share_iOSApp_Other

If the media continue this negative onslaught towards dementia, we have no chance of reducing the stigma associated to a diagnosis. But thankfully Law was honest. Yes we know it’s a bummer of a diagnosis, BUT there is life still to be lived…..by chance I’d written a poem the week before….

One word we don’t hear at diagnosis, 

one word we so desperately need, 

sinking into a depth of despair 

simply because that one word is missing, 

…….

One word for the life still to be lived, 

one word offering encouragement, 

one word that could help us see light, 

amidst this dark black tunnel….

…….

One word that smiles, 

that brings about relief, 

one simple word to help us cope, 

what is that word? 

It’s HOPE.

A small word that can have a huge impact on someone’s life…..

About wendy7713

On the 31st July 2014 I was diagnosed with Young Onset Dementia. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

22 thoughts on “The one word we never hear from the media…..

  1. Thankyou Wendy for your positive post. I find myself correcting people when they say ‘sorry to hear that your mum is suffering with dementia’ I remind them that she’s living well with dementia! Your poem is brilliant Wendy. I see another book on the horizon, with your photos, antidotes, wise words and poems 🤩🤗👍 xxx

    Liked by 1 person

  2. Thank you for sharing this . I am totally amazed how lucid Dennis’ and your statements are.
    My Husband is approaching his 83rd birthday and I am no longer able to hold a conversation with him or engage him in any way during my visits to him in Care.He was diagnosed with Alzheimers in 2015.

    Liked by 1 person

  3. thank you so much for being back in my InBox, I have missed you during your holiday break. My husband could have done with knowing you when his cousin was diagnosed with Alzheimer in February 2014. The specialist she saw at the time was so negative and pessimistic that the cousin’s partner of over 10 years declared he thought she would only have two years before she passed away and promptly found himself another girlfriend. The cousin’s daughters actually believed the specialist advice of not telling their mother she had Alzheimer! The daughters in their late thirties coped as best they could to keep their mother in her own home but she kept disappearing during the night, sometimes with a handbag full of cash (never found out how she got it). When she became physically violent and would not let anybody in to her house, the private carers, paid at great expense to look after her, gave up. She has now been in a special home for about three years, unable to walk for the last 9 months, hardly talks, does not recognise anybody although when my husband last visited her she appear to know his voice was very familiar and reacted to him by opening her arms for a hug. Unfortunately this was not allowed with the virus. We live 450 miles away from Kent so cannot visit as often as we would like. To be fair to the boyfriend, he started visiting her regularly at the home which is a great help to the daughters. All but one local friend have abandoned her, they ‘got so upset when they first visited her’.
    Please keep blogging and taking your beautiful photos during your walks, you bring a ray of hope and sunshine to us.

    Liked by 2 people

  4. Excellent comments and lovely poem, Wendy. I think that your book and your blog reach so many people that it’s helping to spread the theme of positivity – and hope – very widely. The press too often want to stress the negative side of all sorts of things, so you and Dennis Law are needed to counteract that.
    (I never read newspapers for many reasons, but even the radio and TV news can be guilty of emphasising negative thoughts; that’s why I signed up to this website – https://www.onlygoodnewsdaily.com/ – for happy little snippets every morning. I recommend it!)

    Liked by 1 person

  5. Remember the positives – the good days and most of all the endless kindness and patience of my husband’s carer – an angel and an example to us all.

    Liked by 1 person

  6. I totally agree, my husband was diagnosed with mixed dementia 3 years ago and we thought it was the end of our world immediately. This was because of how it was presented in the media, but also because of how the diagnosis was given. We now realise there is a lot of life to have after diagnosis and we have been on holidays, go to the pub every week and socialise with lots of friends. My husband is still physically fit, enjoys a laugh and is very entertaining. Yes he needs more help but can still do a lot himself. I wish I had known this sooner as we are both young and wasted time thinking about the end.
    I hate the way when they announce it it is like they are already dead.

    Liked by 1 person

  7. Against all odds – HOPE is, what I have for my friend, who, three days from now, will be going into a care home, especially for people with her condition. HOPE, that she will find the peace and quiet, she can`t find in her home anymore. HOPE, that she will be taken care off with affection and respect. HOPE, that the time to come will be peaceful and calm for her. For me, it means, I loose her now, as her family is taking her to where the daughter lives, meaning I will no longer be able, seeing her on a regular basis. It’s a sad time. So I will take HOPE and comfort from your posts. Thank you for that!

    Liked by 1 person

  8. Hope is needed more than ever in these times in which we live. Thanks for this post! To your reader Lilli, whose friend is going into a care home far away: perhaps she can be in touch with their social worker and arrange regular virtual visits with her friend via zoom or facetime. If hospitals can do it, surely a care home can too. I’m sure it would brighten her friend’s day to stay in touch. Best wishes!

    Liked by 1 person

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