“We believed we could…and we did!”

Dementia Enquirers……to show what we can do…

So it’s the start of Dementia Awareness Week. I’ve never been particularly keen on this as for those of us affected by dementia it’s with us every day of the year and never goes away. So to spotlight it one week a year seems a tad patronising to me, but hey ho, it gets people talking again I suppose. 

Innovations in Dementia were given funds from The National Lottery Community fund to set up Dementia Enquirers, a new approach to research that is led and controlled by people living with dementia.The lovely cartoonist Tony Husband came up with our image

The reason for the image, is that ‘leading’ the research doesn’t necessarily mean being behind the wheel. Every component of a car helps you get from A to B. Someone maybe the headlights, coming up with the direction, the ideas we take, others the wheels making sure it happens, down to the nuts and bolts holding it all together – every component vital. Even the professional lead researchers delegate work to be done by others and we were no different.

The difference in our research was that WE chose the subjects that WE thought were important. WE decided how to go about it. WE invited others through our door to support and help.


We believed we could…and we did!” 

The projects are:  

  • Thred, Liverpool: How can urban and rural transport systems help people diagnosed with dementia live independently for longer?
  • Minds and Voices, York: The pros and cons and particular needs of those living alone with dementia and those living with a care partner
  • Beth Johnson Foundation, Stoke on Trent: Does class, ethnicity or intellect affect the dementia pathway?
  • Riversiders in Shrewsbury (with Minds and Voices, York): an enquiry into the what DEEP and Admiral Nurses know about each other
  • Our Voice Matters, Hartlepool: An enquiry into the benefits of groups for people with dementia
  • DEEPNess, Isle of Lewis: The necessary components of a dementia-responsive teaching video
  • EDUCATE, Stockport: The EDUCATE Echo project

We came together last week via zoom to celebrate the launch of our reports – the findings from all our hard work over the last couple of years. We had the challenges of Covid, but we overcame them and continued adapting as we always do.

Now obviously I’m biased because our group in York, Minds and Voices was one of these groups and you can read our interesting findings and advice for professionals as a result on the link below 

But obviously ALL the groups looked into some really interesting subjects and the rest can be found here:

As we said at the beginning:

We believed we could…and we did!” 

About wendy7713

On the 31st July 2014 I was diagnosed with Young Onset Dementia. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

9 thoughts on ““We believed we could…and we did!”

  1. As you say Wendy, it needs to be in the spotlight for more than one week of the year. I guess though every chance there is of spreading the word of the devastating effects this condition can cause hopefully will help towards more research to find a cure. I follow a Facebook page from Australia called Omar’s Applesauce. It is the story of one young family who are caring for the husband’s mother who is living with dementia. They are documenting her story and spreading awareness around the world. He is a filmmaker and has made lots of videos and appeared on TV etc. It’s certainly spreading information and raising awareness.

    Liked by 1 person

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