Dementia Enquirers……to show what we can do…
So it’s the start of Dementia Awareness Week. I’ve never been particularly keen on this as for those of us affected by dementia it’s with us every day of the year and never goes away. So to spotlight it one week a year seems a tad patronising to me, but hey ho, it gets people talking again I suppose.
Innovations in Dementia were given funds from The National Lottery Community fund to set up Dementia Enquirers, a new approach to research that is led and controlled by people living with dementia.The lovely cartoonist Tony Husband came up with our image
The reason for the image, is that ‘leading’ the research doesn’t necessarily mean being behind the wheel. Every component of a car helps you get from A to B. Someone maybe the headlights, coming up with the direction, the ideas we take, others the wheels making sure it happens, down to the nuts and bolts holding it all together – every component vital. Even the professional lead researchers delegate work to be done by others and we were no different.
The difference in our research was that WE chose the subjects that WE thought were important. WE decided how to go about it. WE invited others through our door to support and help.
“We believed we could…and we did!”
The projects are:
- Thred, Liverpool: How can urban and rural transport systems help people diagnosed with dementia live independently for longer?
- Minds and Voices, York: The pros and cons and particular needs of those living alone with dementia and those living with a care partner
- Beth Johnson Foundation, Stoke on Trent: Does class, ethnicity or intellect affect the dementia pathway?
- Riversiders in Shrewsbury (with Minds and Voices, York): an enquiry into the what DEEP and Admiral Nurses know about each other
- Our Voice Matters, Hartlepool: An enquiry into the benefits of groups for people with dementia
- DEEPNess, Isle of Lewis: The necessary components of a dementia-responsive teaching video
- EDUCATE, Stockport: The EDUCATE Echo project
We came together last week via zoom to celebrate the launch of our reports – the findings from all our hard work over the last couple of years. We had the challenges of Covid, but we overcame them and continued adapting as we always do.
Now obviously I’m biased because our group in York, Minds and Voices was one of these groups and you can read our interesting findings and advice for professionals as a result on the link below
But obviously ALL the groups looked into some really interesting subjects and the rest can be found here:
As we said at the beginning:
We believed we could…and we did!”