A visit from Suki Chan…..

Some of you may have logged into see the video, ‘Hallucinations’ by my talented friend Suki Chan the other week. We have been working together for a few years now and when lockdown eased, Suki was able to pay me her annual visit.

I’ve had both my vaccines and Suki tested herself the day before the visit which came back negative, so all was well for more filming with this lovely lady….

She’d sent me her latest offering of a 45 minute video around ‘my fog’ which we’d created over the last couple of years. Now usually, 45 minutes is too long for me to focus but I was mesmerised. I sat watching listening to my voice and watching her interpretation in images absolutely captivated. She was here today to capture more footage…….

Suki is one of those people that I felt an instant connection when we first met. We look at things in a similar way and have an understanding similar to that I have with my partner in writing Anna Wharton. Maybe that’s why it works, just as me and Anna work so well together..

Anyway Suki arrived at last Tuesday at 9am as planned with all her gubbins that comes with filming. Her hubby went off with the children…. It was so lovely to see her. I instantly feel relaxed and at ease in her company.

We recorded me chatting as usual about anything and everything. She mentioned how I seemed no different to last year and there followed the conversation about seeing the outside of the person and not them living on a day to day basis. The reason our conversations work is because we have time, instead of being rushed on the radio or time limited, we take as long as it takes, so there’s a calmness surrounding our meetings.

We talked about the future of our filming and what I would like to happen if suddenly I couldn’t contribute as I do. I said to film me as I am, maybe with the support of my daughter. It’s no good just showing the positives, or just me as I am now, the whole aim of us doing this was to show the reality of my dementia. I ran this idea passed my daughter later and she was in full agreement…

It felt like we chatted for ages before moving onto the 360 filming in the garden. Suki’s aim is to allow others to experience my shed disappearing by using 360 degree filming and then magically making my shed disappear from the film and the audience looking through a phone to see it actually does exist and it was my brain playing tricks….so clever….I love the camera itself

Looks like a smiley robotic face……

Unbeknown to Suki, my little Robin was keeping an eye on the proceedings……

And the blackbird came to say hello

Before Suki then taking some stills 

…..then finishing in the conservatory . She txted her hubby asking if they wanted to come for a walk to the village pond as we had one more shot of me to do. I won’t be seen in the film until the very end and it was that shot we needed. It would be just my voice for the rest of it and Suki’s marvellous wizardry of images and music……..

Suki’s children Zi and Q arrived excited to be going to the village pond. They live in London, so green space isn’t something they’re accustomed to. They appeared to love the space, the ducks and everything around, it was so nice to be with children, as excited as me to see the ducks.

We did our piece to film and during it I took a piccie of Suki filming me 

Before we left her hubby took a lovely piccie of us together

I hope to be with her in Liverpool next year showcasing some of  her work if it still happens….think it was suppose to happen this year but we all know what a right off that was…

A different day, a day from the past and pre lockdown. I hadn’t realised how exhausted I was until they left and I tried to take a walk, much later than usual….I was in silence again but it was well worth the exhaustion…..

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

9 thoughts on “A visit from Suki Chan…..

  1. What a lovely blog Wendy! It looked like you had a good time, and, as you say, the fact that you could both take your time meant you were able to relax and so Suki could get some good footage. I look forward to the end product!!

    Liked by 1 person

  2. What a lovely, different day for you. It’s wonderful that you and Suki have such an easy going friendship. I would love to see the finished production, do you know if it will be online next year or will Suki showcase it only in Liverpool? Thankyou for sharing this with us Wendy 😊xxx

    Liked by 1 person

  3. I like the use of the disappearing shed to portray your “brain playing tricks”. Clever. And that is a very cool -looking camera! Should be an interesting film.

    Liked by 1 person

  4. Wendy, you amaze me over and over again….your openness to new experiences and your willingness to share. It’s the secret to life for us all …… to make the most of our days no matter the challenges. Thank you. Anne

    Liked by 1 person

  5. Sounds like a perfectly lovely day. And the children enjoying the outdoors would have finished it off beautifully. I’m so happy for you that you have these special moments in your life. I’m also grateful to you and your daughter(s) that you have no hesitation in allowing others to see the sometimes unpleasant realities of living with dementia. Those are the hardest ones to deal with for everyone involved and seeing how caregivers cope with those is such a valuable piece of the story for all those affected. Bless you all!

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.