A new ‘remembering, a new routine……

I think the biggest challenge so far has been to come up with a new routine with purpose to pass the time of day…..some have been successful others really havn’t….

I tried shaking my routine up on Monday, to break the monotony….BIG mistake….all I did was put the kettle on before my shower instead of after and watch BBC breakfast on my iPad upstairs instead of downstairs …..I was discombobulated for hours……😔..this change in routine confused me no end. A simple change in putting the kettle on before my shower instead of after meant, when I went back upstairs to shower I didn’t know where to start. I had to wrack my brain as I could hear the kettle boiling and that wasn’t the right noise to go with having my shower…it set me back for the rest of the day….mustn’t try that again….

Zoom ‘’get togethers’ have been my way of socially connecting with people. My regular Zoomettes meeting has always been and still is, wonderful….all women with dementia sharing laughter and tears. But many others have now been added, since travel is out of the question. But all these zooms have to be remembered over lots of crossings out on my calendar….I found that really difficult as it’s hard enough to write and read my writing. To try and write over crossings out made me feel anxious about forgetting things.

I started just putting them on my phone as reminders but then there were so many I couldn’t keep track of when they all were and started double booking 🙈…..so now set alarms and write them on my empty weekly calendar…..however even that went array yesterday as I’d put 2 of the reminders on my calendar and a different 2 on my phone 😳…it wasn’t until my alarms went off that I realised they were totally different🙈…so I had 4 yesterday which was a big mistake…..

I’ve found that two Zoom sessions a day is my max as they’re very tiring as you have to concentrate so much and by the end of the 2nd one I’m all zoomed out. At events and in meetings you can disappear into your own world for a while however with zoom  you have to concentrate really hard to keep up with everything. But it’s certainly been an entertaining way to keep connected and meet some people I’ve only ever known as ‘virtual’ names…..and it’s our only way at the mo…

 I’ve even put ‘eating’ lunch into my new routine 😱, just to have something in that routine. I only ever ate lunch was I was at events and it was put in front of me, but now a Wensleydale cheese roll with pickle is part of my new routine between 12 and 2pm…not quite sure what I’ll do when I run out of cheese 🙄😂

I always fit in a  walk while we’re allowed and take my camera with me to capture the moments….I even post them on the village web site and I’m meeting new people on my walk who suddenly realise I’m the ‘camera lady’ which has been a nice bonus….

This ‘new remembering’, new routine, has come hard to us all. I do wonder what I’ll make of it when it all ends..🤔..it already seems odd when you see old footage on TV where people are close together, going about on public transport as we once did. Think I might find it hard to go to big events, where they’ll be so many people in close proximity and sooo much noise.

It was the topic of the ‘Virtual Cuppa with Wendy’ on Tuesday – “Facing your Fears and possible solutions”. There were 3 other playmates on the call with me and 10 others and each playmate expressed the fear of how they will be when all this is over, due to lack of normal ‘doing’. Here’s just one screen of attendees…

I said how we’ll need lots of support from our ‘able enablers’ to regain some possible skills, especially of travelling,  and if they’ve gone to find new ways of doing what we love…unless it’s too late.

I ended by saying how important it is NOT to think of the end as no one knows when that will be at the mo…could be weeks, could be months. So to help us cope, simply concentrate on one day at a time.

“Enjoy today and whatever that brings, and if today is a bad day, a stressful day, then tomorrow might be better”

AND I still adore simply sitting in silence…..

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

17 thoughts on “A new ‘remembering, a new routine……

  1. Agreed, Wendy, adapting to new “normal” routines is hard, and it takes time. It’s best to just change one thing at a time to get used to, but as you have found that’s not always an option. We’re confined to barracks as we’re both well into the vulnerable category. My husband, who has Alzheimer’s and poor mobility, has wanted to go out the front door on short walks and I have put a chair by the door with a No Exit sign printed off the internet propped up on it. I have also installed a door alarm so that I know when the door opens. He has to be content with walks in the garden now, which are much shorter, but it’s lovely to notice signs of Spring emerging, hear the bird song and enjoy the company of a cheeky robin. The air is so much cleaner now that he has lost the coughing and sneezing fits he used to have (we live near Heathrow Airport and the M25). Now we know what caused them!
    Keep your spirits up, Wendy. Great to know that you are being appreciated by the locals as well!

    Liked by 1 person

  2. Dear Wendy, sending you my love from far away. I imagine the challenges you are facing. It is a difficult time. It will end, we do not know when. Until then, keep safe and take good care of yourself. You are a brave and inspirational woman! All my love!♥️

    Liked by 1 person

  3. You take some fantastic pictures Wendy. It sounds like you’re coping a lot better than some people, even though it must be extra confusing for you. I try to be proactive & concentrate on the good too. It will be a wonderful day when we’re able to be with friends & loved ones. I’m just thankful we have technology to enable communication now. Take care. x

    Liked by 1 person

  4. We have an Amazon Alexa to remind us about doing things. It is very useful. I also use it to play Smooth Radio and audio books which I find helps my husband’s dementia. Sadly he gets very bored after a short while and he has never been keen in TV. I noted your comments earlier this week about a possible mini stroke. My husband has a great deal of difficulty with words so will keep an eye on him to see if there are any signs of a mini stroke.

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  5. Dear Wendy, even being four years in a ‘homeoffice’-situation, because I have looked after my parents, it is a complete other situation in these days.Everything has changed, also the mood of lots of people, it is such a strange situation that even a normal routine in not normal🙄😑Keep safe🤗💕

    Liked by 1 person

  6. I have known for a long time that my husband doesn’t cope well with changes in routine but am ashamed to say I didn’t realise, until I read your blog, how difficult even one small change such as when to put the kettle on could make his life. thank you so much for all the insight you giving me.

    Liked by 1 person

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