The next PIP trauma wait arrives…..

Yesterday was the date of the rearranged PIP (Personal Independence Payment) visit…..last month they were due to appear  but failed to turn up… can read about it here if you missed that one…

Yesterday the letter said they were due to arrive between 09.00 – 11.00 and I sat waiting for Gemma to arrive. The nerves had been rising inside for days….that feeling of worry, that whittling and gnawing away in my head…….knowing what was to come…..or not knowing….

The early morning was a roller coaster fuelled hour as I opened my inbox to find a wonderful email from a company that I’m hoping will help me with my next fund raising adventure. My support group at York Minds and Voices, is running out of funds, so this year I’ve decided to raise money for them. I looked through the piccies of my sky dive last year and was transported back to that wonderful day….floating in the sky…..and for a moment it lifted my spirits…

They agreed to my taking part in the adventure….just need to find the right method to raise money now so WATCH THIS SPACE!!

After reading that, I closed my iPad and the worry returned, Gemma arrived, and we sat waiting for the Assessor to arrive…….

They were due between 9-11 and amazingly arrived at 9am 😳……my stomach churned as Gemma let her in……

We sat there for 90 minutes, talking about all the things I can’t do, about my vulnerability, my failures…obviously I wasn’t typing so this is simply what sprang to mind as she left…..

She was very thorough…appeared very kind. I was very vague, as usual, as I find it hard to remember the bad stuff, trying continually to block that from my mind every day. But luckily Gemma didn’t, and filled in all the gaps, prompting me where necessary….guiding me through this maize of conversation that left us both exhausted but glad it was over…..she did give us one helpful suggestion – for one of my daughters to become ‘An Appointee’. I’d never heard of that term before, but apparently it will make some things easier. We’ll have a conversation and do some digging around. How are we suppose to know these things if no one tells us in the first place…? But at least she did..

As the woman was leaving, she apparently said to Gemma:

People like your mum shouldn’t have to go through this, but sadly it’s the system…”

Well at least she had a heart and saw that…..but it’s not her that makes the decision and someone else could look at her report and see things entirely differently. We will just have to wait and see….

As she disappeared and left me and Gemma on our own, we hugged and I cried…..simply the relief of it being over leaking out through my eyes………a system which tries to catch out the few and fails to support those with a genuine need…..

About wendy7713

On the 31st July 2014 I was diagnosed with Young Onset Dementia. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

25 thoughts on “The next PIP trauma wait arrives…..

  1. I’m thinking positive thoughts for you Wendy. I’m awaiting a review myself, unsure when as I need a home interview too (was approved months ago) but no idea when it will happen due to lack of staff. Hope the experience hasn’t wiped you out too much. You’re a lovely lady.

    Liked by 1 person

  2. So sorry to hear that you have to go through this . So unfair. I dread to think how people cope that are on their own with no family to help them in these situations. And we are in the year 2020! You would think by now there would be more understanding and knowledgeable help and care available. Best wishes to you Wendy

    Liked by 1 person

  3. Makes me sad that you had to go through this wendy.
    Knowing what a positive person you are is very telling that this process is so stressful for people living with dementia and their families.
    Take care and bounce back soon! Xx

    Liked by 1 person

  4. Another hurdle completed, Wendy! I know several people who’ve had to go through that ordeal and none of them have a good word to say about it. So glad you had Gemma there to pick up the missing links.

    Liked by 1 person

  5. Glad this was more positive. Well done Gemma and all your support network for helping you keep going and to you for wanting that – and sharing your how-to’s with the world. I am regularly inspired by your insights. All transferable to people with different issues – or at least to me having loads of avenues to try. I know if something works with one, it works with one!

    Liked by 1 person

  6. You, or your daughter, writes a letter which you sign making her your appointee for Benefits. She then can do all the work, but she is liable for overpayments etc. Ethel gets them to ask me if it’s alright to speak on my behalf. Powers of Attorney waiting, signed, for the right time.

    Liked by 1 person

  7. So sorry you had to go through all that again. There must be a kinder less stressful way to work out who is eligible to PIP. Keeping fingers crossed it will be a good outcome this time round. Xxx

    Liked by 1 person

  8. Totally agree Wendy. This quite horrible process is not what should happen! I do so hope that a decision will be made in your favour. If not, I recommend an appeal, through your appointee which is your right. I am local to you and would happy to help Gemma in any way I can!

    Liked by 2 people

  9. So glad it seemed to be more positive than last time, Wendy. Let’s hope the outcome is good – such a stressful thing to go through. The powers-that-be should read your blog.🙏🏻

    Liked by 1 person

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