I’ve spoken many times about how technology enables me to remain independent, well Zoom enables me to ‘meet up’ with playmates. This week on 2 such occasions …
Every Monday at 5pm, the Zommettes meet on line to put the world to rights, provide ears to listen and share laughter and sadness. There’s 10 of us, I think, including our ‘able enablers, Anna Harrison and Aimee Day. The wonder of zoom, is we don’t have to live near one another. It connects those in remote places with those in cities and towns.
We talk about absolutely everything, knowing we can trust those on the call and also, realising that within minutes of hanging up, most of us will have forgotten anyway…🙄😂🤣
Aimee and Anna, our ‘able enablers’ keep us in order. Me and Agnes are usually snug in our beds, afterall, it doesn’t matter where we are or what we wear.
I could only stay 10 minutes this week as Stuart was picking me up early for my tea….but I couldn’t miss clicking the link just to say hello to those who had made it…and it’s always comforting to see playmates on screen…..
Yesterday was the second zoom of the week for Dementia Enquirers Pioneers. This is the project where people with dementia are leading from the front on research and inviting academics through our door when we need their help. You can read more about our wonderful project here..
It was hosted by the Thred group from Liverpool (Transport, Health, Research, Economy with Dementia) with the lovely Liverpudlian Paul Hitchmough chairing and supported by his ‘able enabler, Louise Langham.
On the call were me, Philly, Louise, Paul, Mhari and Ron.
Paul, me, Mhari and Ron, all have dementia and Paul kept us all in order …..no mean feat, which he did brilliantly!
Paul and Louise filled us in on their project on Transport, how it impacts on our life with dementia. They’re well ahead of me and my playmates at Minds and Voices as they’ve organised an online questionnaire, which I’ll share when available and they’ve booked themselves trip through the 4 nations to hear from as many people with dementia as possible.
Minds and Voices havnt met for a couple of months but our project is all about Liviing alone versus living as a couple. We have decided on the questions (I think!) and plan to interview other groups.
I spoke of the difficulty in keeping up momentum when we simply forget it exists; when one meeting merges into another and we forget the smallest details and almost have to start all over again. We came up with ideas to help remedy this.
I wasn’t typing as we were on ZOOM, so any more detail has already left me, but I know we left feeling inspired, feeling we wanted to crack on and ‘do’. There’s nothing more wonderful than meeting up in person but it’s so costly so this is an alternative and allowed people to join from the Western Isles, across to the West and East and from the centre of the country……..and a virtual hug is also comforting…..
I work out ZOOM in the past, but I think it was Philly who talked me through it and gave me a practice run and now sends out a simple link for me to click on which immediately takes me to the meeting, making it straight forward.
There are 12 projects happening around the country, all led by people with dementia, all the research topics chosen by people with dementia. We have until May to complete and then hope to write our own publications and get the media involved as this really is a landmark project showing what people with dementia CAN do with the right support and encouragement……..