Hot off the Press……..!!

Today sees a major announcement by my favourite people…….

“Innovations in Dementia celebrates £700k National Lottery grant to help people with dementia have a say” 👏👏🙌🙌

It’s the launch of their Dementia Voices Programme and will include a continuation of funding for DEEP and Dementia Diaries…..both of which play an enormous part in my life…..

It was in the early days of my diagnosis that I came across Innovations. It was founded by Rachael Litherland and Nada Savitch who wanted ‘to inspire people to think differently about dementia.’ I first met Nada at the York Women’s Conference that appears in my book and that conference changed my thinking and took me into a whole new wonderful world.

Since that day, that day when I was inspired to think differently about dementia, they have enabled me and many others to take part in all kinds of events and campaigns. More importantly they have allowed people with dementia to meet each other and become part of the wonderful family that is the DEEP Network. Pre dementia, I was never one for joining groups, but when I was diagnosed I had this urge to meet others going through what I was going through. The moment I stepped through that door and saw ordinary people, just like me, was a life changing moment. That’s why Minds and Voices is so important to me. We’re just there for one another, to share ideas, to support one another through good and bad.  We can walk in feeling down and leave with a smile on our faces.

We’re part of the DEEP Network, as are over hundred groups now up and down the country. It makes you feel like part of a family, a different family, a special family. You can see if there’s a group near you, or just find out more, on their web site and if run or belong to a peer support group, please think of joining us….

https://www.dementiavoices.org.uk/

And through Dementia Diaries they have given me and my playmates a way to communicate with the wider world…..

You can listen to me reading this blog on Dementia Diaries …

https://dementiadiaries.org/entry/13556/wendy-celebrates-the-launch-of-the-dementia-voices-initiative

Amazingly there are only 6 people in this not-for-profit organisation, Rachael, Steve, Philly, Damian, Rachel and Kate. You would think there’s a whole army with the amount of stuff they do!…but those 6 people work tirelessly enabling me and all my playmates and together we make up this giant army doing our very best to bring about change and continue to inspire others entering this alien world to do the same….

Funding is always an issue for many organisations so I’m so thrilled the National Lottery has seen fit to back this project with the £700,000 grant. Yes they are a small organisation, but have an understanding of our needs far bigger than their size. They are the only people I trust to support me because I know they ‘get it’. They are willing to listen and learn continually. They never forget why they do what they do.

Me and my playmates would be lost without the work of Innovations. This money will enable them to continue, in their ever innovative way, to help people with dementia inspire each other and inspire others to think about dementia differently…..

This news has made made my day……..and this lovely piccie of the 6 mashed together by Rachael shows what a smiley lot they are – our ‘able enablers’ for all to see……from left to right, Rachel, Damian, Philly, Kate, Steve and Rachael…..although we must get a new piccie of Steve so he looks less scary and less like a convict!!

 

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

10 thoughts on “Hot off the Press……..!!

  1. Hello and what absolute joy to read something so positive today.
    So often it feels as though we’re banging our heads against a brick wall with regards to the stigma and lack of knowledge connected to dementia. To read your blog and know that there are such wonderful people working tirelessly is very uplifting on a grey winter’s day. Thank you to you and them.

    Liked by 1 person

  2. Great news, I loved meeting you at the York Women’s Conference and just had another request for the Sensory Booklet. This was a project you where a part of, which is still going strong. The video has been watched over 3 thousand times on You Tube. What you do makes a difference. Keep on, keeping on. Have a wonderful 2020 hugs Donna

    Liked by 1 person

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