My Monthly Trundle to be with my Playmates…….

I really needed a day at home yesterday after a weekend away ….but it was our monthly get together of Minds and Voices, so I found myself crawling out of bed at silly o’clock as my calendar had told me I couldn’t make our Christmas meeting……so how could I miss this one……

It was the usual dark silly o’clock start but the weatherman, the night before, had said it was going to be a sunny day…….mmmmm, me thinks he forgot to tell the early morning rain clouds as it was damp and soggy as I trundled in the taxi to the bus station……

However, the early morning sky did seem to be promising that it was saying goodbye to the night rain clouds, and making way for something better

The bus is always silent at that time in a morning. Fellow passengers having forty winks or simply away in their own thoughts, maybe of a weekend of fun and laughter and were now coping with Monday morning blues, heading for work once more……even when school children joined us they were subdued and hadn’t woken enough for their usual sqeals of laughter and jokiness….

It was so cold on the bus that my feet were like blocks of ice and I sat hunched up with my hood up…..I got off in York town to trundle my way to the pick up point of the station in the hope that the exercise  would wake up my frozen limbs….and it meant I could take another piccie…..this time in daylight with the sun shining….I was trundling past the Museum Gardens when I spied the sun glistening through and couldn’t resist a detour…..

Damian txt me to say he was a bit late so I stood frozen to the spot until he arrived….😂……once we got to Lidgett Grove, Anna had my cuppa tea ready to warm my hands………

Playmates began to arrive, Bob and Sue being first, so lovely to get in my first hug and catch up…..Anna went to pick up Rita from the Care Home…..first time with us since she’d moved. It was a wrench for her to give up her lifetime home but as she sat down next to me, her face lit up and she said she loved the home…so all was right in the Rita’s world……..

Fleetways Taxis had forgotten 7 people so playmates were still on their way………

3 new people came in which was lovely……..and me and Eddy sang, ‘Come and join us…” 😂 which may or may not have settled their nerves………and then 2 more newbies arrived and we sang again automatically…🙈

We went round the ever expanding table, saying who we were…..

2 newbies joined through wanting to join the choir, but it wasn’t there anymore and instead they found out about Minds and Voices and thought they would give it a go. Eddy was able to tell them where they could go to join the choir as it had moved venue. The other 3 joined through finding us on line. Bob has dementia and Mikey, said on Bobs behalf, that he couldn’t hold a conversation……..Bob piped up…

I can hold a conversation when I want to….” 😂 perfect…..perfect….perfect…….⭐️⭐️

A couple, Newbies from a previous week said of Minds and Voices, “we’ve found it inspriring…..”

Eddy filled everyone on his Blue Badge debacle…..he’s been refused even though that very morning he’d nearly got run over cos he wasn’t aware of his surroundings……..Anna has arranged a meeting with the Blue Badge people at the council so Eddy is going with her……👍

By this time everyone had arrived…….bigger table now as we’re growing so fast!

I spoke about a possible collaboration and project with York Theatre Royal……I had the Youth theatre person Kate Veysey, visit me at my village. I said I’d feed back the idea to Minds and Voices, and then if there was any enthusiasm, I’d put her in touch with Damian to book a spot to visit the group……..and well…….there were so many yellow cards go up that I can safely say there was enthusiasm……..

One newbie, who had come as a supporter, said I didn’t look like I had dementia, as I could speak all about Kate visiting me 😳🤐………sooooo…there then followed a conversation about what we should look like….all gentle and informative………but hopefully making a point without putting them off…..

We then went onto the main agenda for the day……our research project……..but first we topped up on tea and coffee……only to realise a major catastrophe………

WE WERE ABOUT TO RUN OUT OF TEA BAGS!!!!!!!!……Damian’s brownie points for remembering the liquorice all sorts was whipped away when he neglected to notice the tea bag situation…….😱🙈……😂🤣😂🤣………

The flip chart paper was stuck on the wall and work began setting out our aims and timelines……..we have until June 2020……..when we would give a presentation to the 10 other DEEP groups who also have been given funding…..so one big party to celebrate…

But now we need to come up with the questions and contact the groups we want to help us by interviewing them……

So we’re going to have 3 focus groups, and 15 individual interviews…….

Damian said how the gold standard is to get ethics approval…..Monica said, ‘Who decides what’s ethical….?”👍

It might be that seeking ethics approval slows things down….but I said how we could put that to the ethics committee, how they need to speed up their process as we’re people living with dementia and 6 months is a long time in dementia world……..

The timescale was the most important as we only had 6 months.

Brian was ‘chief Literature reviewer’………and Brain said, ‘Why not, it’ll give me something to do over Christmas….” 😂🤣

We finished off before lunch talking about the questions…..the pros and cons of living alone versus being in a couple……..

Brian described living alone as “a luxury” 😂…….Eddy says he feels sorry for people who live alone……Monica, who lives alone says ‘if I make a mistake there’s no one around to criticise”

Damian asked Monica, “what would you feel like if you did have someone living with you” and Monica said….” Well they would say “ I shall go get a bottle of milk and I would sit there doing nothing and vegetate…”❤️

So much interesting conversation came out of this…..I had to sadly rush off for my bus, but not before adding my suggestions for questions…..

“what are the advantages of living alone?”

What are the disadvantages if any?”

What are the advantages of living as a couple?”

What are the disadvantages ?”

And to ask both parties each set of questions……

Shame I couldn’t stop but my village buses are few and far between now which means I have to leave York at lunchtime 🙈……

But a last piccie from this morning where I  caught the reflection of autumn in the river as I trundled across ….just beautiful light and colours this morning and an added bonus was seeing my playmates….🥰

 

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

9 thoughts on “My Monthly Trundle to be with my Playmates…….

  1. Awe, Wendy!! I’d be gutted if I couldn’t drink tea. My wife brings me a couple of flasks when she comes up to see me. Saves too many trips up and down!!

    Liked by 1 person

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