A Trundle to support a playmate……..

Yesterday I had a trundle to Halifax – don’t think I’ve ever been there before 🤔…..

A lovely playmate of mine, Julie Hayden, set up a DEEP support group for people with Young Onset dementia in her area, because, once again, there was nothing……..

Julie had contacted me a while ago to ask if I’d attend their annual awareness event which also happened to be their 2nd birthday!

Originally it had been planned for next week but then I got a sudden unexpected invited to speak in Italy 😳….did I just say that……gulp🤯…….but more of that next week……

Anyway we managed to switch and change things around so it fell on their second birthday instead, so was meant to be….

The sun was shining on the world when I opened my curtains…..but the taxi driver was late….I rang their number as usual, and my lovely phone person at the other end knew it was my number, said ‘Hello Wendy, sorry he’s late but you’ll still be there in time for your train’….all I had to say was ‘Thankyou’……perfect….wonderful when people are prepared to understand…..

He was a very chirpie driver, who sang ‘Mr Blue Sky’ all the way there and we arrived with 5 minutes to spare…..⭐️

I then looked at my email from Julie and we’d agreed for me to be met at the station at 13.24…..I seem to get numbers in a pickle of lately and had actually left 2 hours early 😳🙈🙈🙈🙈……but when I got to Hull, my train was mega delayed so for once it didn’t matter 🤣

I tried to add 10 to 38 and came up with 58 🙈 but knew something wasn’t right……maths was my strongest subject at school…😔…..numbers so often become a problem for people with dementia and that seems to be becoming the case with me…..me thinks it’s because I travel nearly everyday, that I don’t panic. I txt my daughters just in case I forgot to tell them this latest issue and Gemma immediately txt me back asking if I needed to FaceTime for help but I’d already found a smiley faced guard to help me…..if I didn’t travel often it may put me off travelling……..

Anyway…….the sunshine over the Humber cheered me up

The chaos didn’t stop there as, due to the train being mega delayed  they decided it would terminate before Manchester, so lots of travellers were looking for that smiley face again……..her smile was tinged with fraughtness by now……..🤯

I arrived in Halifax, watched the world go by for a while, due to my timing and was soon met by Rosie from the Alzheimers society who was having a stand at the event. We ambled along and a few minutes later  were in a wonderful renovated church  which has now been converted to a community venue where they have a theatre, café and many rooms……..and of course my first task was to have a hug with playmate Julie

It was an event specifically aimed at highlighting Young Onset and I was hoping word would get round that Julie’s DEEP group exists…….the Mayor arrived as did some other helpers. We were hoping the weather wouldn’t put people off, but you just never know at these events……

After waiting and waiting, it was obvious that people just weren’t going to arrive. I felt sooooo sorry for Julie……people put in such hard work organising events and when people who promised they’d come fail to turn up it must be so disappointing. I don’t mind….it happens. You can’t force people to come and listen…….but my heart sank for Julie……….

So instead of what was planned we simply sat and chatted and that was nice in itself. It also meant I could catch an earlier train home which is always welcome. However, arriving at Leeds I found more chaos, more cancellation, more delays……so my ‘on time sardine’ train didn’t seem too traumatic……….🙄

 

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

12 thoughts on “A Trundle to support a playmate……..

  1. Sometimes it feels as though everything goes wrong. Good that you found a way to enjoy it even so. Please can you explain what DEEP stands for?

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  2. It’s an additional difficulty for people with young onset dementia, to organise events or services within reach of enough people. Even in the Leeds City Council area (population 770,000) has only 230 people aged under 65 with a diagnosis of dementia. Credit to your friend for having a go, and to you for supporting her.

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  3. Hi Wendy, Sounds like the trip turned out to be bigger than it should. I’m sitting in a train now that is running late (for a change), so am trying to calculate the connecting buses, I have to catch two. Like you, I used to be really strong at Maths, but really struggle now, especially around digital clocks!!!! Hopefully I have worked it out, but you never know 😉 I agree that the more we travel on public transport the more we cope – I have friends (without dementia), who freak out around it. Always love it when I can relate so strongly to your posts. Take care. X

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  4. Thank you, Wendy, for your insights into life with your particular illness. The problems around numbers must be very frustrating, yet you still seem to be smiling! I hope our paths may cross, one day, as I would love to meet you – although I do feel I know you from the blog. 😊

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