Heading to London ……….Day 1

After a lovely overnight stay in Leicester I arrived home mid evening to pack for the next trundle the following day to London. I’ve got a full diary now until the end of October and they all seem like a good idea at the time. But then November is quieter – I wish events could be spread themselves out a bit better 😂

I never know when it will be my last, like never knowing when the ‘last’ of anything will be, so, although I decline lots of offers, I do like to cram my diary,and suffer the consequences after🙄

On the way home from Leicester, I had a sudden panic of not knowing anything about the following day. I had a hunch it would all be waiting for me on my kitchen workshop, but couldn’t remember any detail of when and where I was meeting Rachael from Innovations. I knew my brain would have shut down by the time I got home so simply txt Rachael. She came back with the detail and I was a happy bunny. Whenever Innovations in Dementia are involved I never worry or plan as much, as I know they’ll look after us and sure enough, my pink file stuff was all sitting happily on the side when I got home……

Waffling again …🙄…..it was a very wet blustery day that greeted me…the only piccie I could get was a rain soaked window so I missed that one out….Piccie of my playmates later will make up for it…..

We were gathering for 3 days for a Dementia Enquirers Pioneers meeting at St Katherines in London. They’d tried to build in more travel and recovery time as it’s a very intense few days for our brains to cope with, but very pleasurable. I don’t think I’ve been to London for months 🤔….and definitely not since I got my hearing aids, so it’ll be interesting to see how the noise is…

Half way there and the skies brightened a tad…well the rain appeared to have stopped…

Rachael met me at Kings Cross along with Dory and then Philly and Tracey joined us and we all trundled in a taxi with a lovely cab driver who was entertained by our stories and laughter, especially about the 3 of us all being in yellow coats

My blog told me I’d been to St Katherines in the East End 3 times, but as the man showed us to our rooms through the maize of corridors and stairs, it felt unfamiliar. It didn’t feel right for some reason. I spent the next few minutes walking round in circles around the room, trying to settle myself – don’t know what was wrong with it….just didn’t feel right or friendly…🤔😔 not sure what’s going on….

We arranged to meet for a cuppa and catch up of the session at 4 so solitaire filled the gap and catching up on Twitterland….and once we were altogether the laughter began again…

We went over the last meetings. We were shown the little video we made talking about reviewing the research projects. You can view it here

https://www.dementiavoices.org.uk/dementia-enquirers/

The film shows the calm relaxed atmosphere we create and can work in with each other. We speak from the heart, and feel so calm and comfortable. We all agreed that it’s other people who make us feel uneasy but here we always feel calm with Innovations because we know everything will be ok, no matter what.

We went through each of the groups who have been awarded money to carry out their own research. Such fascinating projects – “Living alone versus living as a couple”
“Does class and ethnicity impact on the dementia pathway for the person with dementia”
Testing out accessible instruction videos for Alexa
To “how can public transport be improved” and many many more…..

It was lovely to see and be reminded of them all again.

Amidst the crashes of thunder, lightening and torrential rain falling outside, inside we were happy and relaxed. We were saying that this has never been done before…..people with dementia in the driving seat and so many professionals are watching and listening…..just to see whether it works…..well, so much time, effort and funding has been put into this project and the way we’re recording the progress will become an historic record for the future….how amazing to be part of it…❤️….to show what people with dementia CAN do……

Finally time for tea. Once again, laughter and conversation dominated this simple activity of eating but we were all fading, or at least I was….so instead of joining the evening sing song, I retired to bed and some silence…….

P.s…..my hearing aids have made London into a tolerable noise bubble instead of the crash bang wallop city of old…..wonderful……day 2 tomorrow…..

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

7 thoughts on “Heading to London ……….Day 1

  1. Last times: I recall my mum saying that you will never know its a last time or remember it, when for example you carry your child up or down stairs the last time, because they can do it themselves the next time. (thats not counting when they are ill later, nor when possibly drunk as teens!!!!! )

    Liked by 1 person

  2. Research conducted by those with dementia – “innovation” is right! Wonderful ideas. I ‘m glad the hearing aids rose to the challenges of the big city. Probably helped with the thunder too 😉

    Liked by 1 person

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