A wonderful event in Newcastle…..

So carrying on from yesterdays visit to the audiologist…..I wore the hearing aid from the start.

Now remember I’m NOT going deaf, it’s simply certain tones of noise physically hurt my ears. Usually when I’m at a station, a train braking, or not stopping and speeding through, is painful…….it was put to the test as I waited in `Doncaster for the Newcastle train. It was still very noisy, of course it was, but it didn’t hurt. I jumped out of habit but then suddenly stood stock still and realised it hadn’t hurt!…….wow…..and double wow………the audiologist had explained that it won’t get rid of sensory overload but, because it’s cutting out the painful tones, it will be a loud noise, but not the raging bull charging through my head…..and it was…….🤩🥵…it’s weird, the noise is still as loud but the hearing aid is set to make the noise normal instead of that specific tone which makes my head rattle…….

I could say ‘If only they’d helped me from the start’…..but you could say that about anything in life. I’ll continue to report back. The biggest thing I’ve noticed is that if your hair is anywhere near the mcrophone on the hearing aid the noise of it is magnified. That would explain why many people don’t like to wear their hearing aids. Wonder how many have given up through simply not realising or being told to keep their hair away…..🙈

I also wonder how many people will start to talk very slowly and loudly at me when they see me wearing it 😳😂………some don’t like the look of them but I don’t have mirrors so won’t see it…..😇

So that was a good start to my trip……

Lola from the Chrysalis Club had invited me to speak at their 10th birthday event on the theme of change and living positively with dementia. They were expecting around 150 people including Healthcare professionals, local councillors, businesses and people affected by dementia. It was being held a drive away from Newcastle at Hexham, where I did a book festival last year and met Lola and she’d offered to meet me at Newcastle and drive me to the hotel.

We txt each other on the journey and there was a beautiful sky to keep me company

Lola met me and we drove in her lovely rich red car to Hexham where she dropped me off at the hotel and I was certainly ready to close my eyes in silence after such a long day……..

I had the normal sleep, wake, sleep wake night, but little images kept coming through from the audiology appointment so I kept adding to yesterdays blog, trying to convert the images into words 😂…..

After breakfast I went out for some fresh air and decided to wear both hearing aids today…I ambled up one side of the street and back down the other.

Lola txt to say Penny would pick me up at 10.30 for me to be in the venue before everyone arrived. It looked wonderful when I got there…

Everyone was so welcoming and friendly and got me a cuppa. The event was due to start at 12. Rosie and her army of volunteers were busy making the place look very special

I had both hearing aids in and although there was lots of noise overload, the raging bull was firmly locked in it’s cage ☺️ I heard some lovely stories while they were setting up 😂. Everyone then started to arrive….

Helen opened the event as they were launching their new branding of Chrysalis Club Tynedale. A group of school children had come who have worked with the group on inter generational projects. There was a ulekle band which were wonderful. She thanked all the trustees and volunteers as so much hard work had gone into today.

The chair of the Trustees, Rosie, the founder of Chrysalis then spoke. They started 10 years ago with 3 couples and here they are at this WOW moment. Their aim is to care for the whole family and are very proud of that. They support people through from pre diagnosis, through to the end stages or in full time care. They don’t have automatic funding, just like many groups, so they have to raise the funds they need……..

My turn next and I spoke of all manner of things and read the Billy piece from my book. People were very kind in their applause.

It was then time to cut the cake

Followed by lunch being brought round the tables.

I was invited to sit next to Sat local crime writer Mari Hannah for lunch along with her partner.

And we had a lovely conversation of how she writes her crime books……..and shared processes……..Mari lives a few miles from Hexham and is a supporter of the Chrysalis club, which is wonderful. She has been asked to be the Patron of the club and has kindly agreed.

Over lunch the wonderful volunteers managed to sell all my books, which made my suitcase a lot lighter to take home!

The ukulele band struck up a chord and the singing started……the music they were playing was right up my street, blue suede shoes, rock around the clock, hound dog and many more…….the school children then joined them along with member of the Chrysalis club.

Ian the singing teacher, brought everyone to order and sang and got the audience to join in and finished on the Beatles, Twist on Shout, with people dancing……

The photo doesn’t capture the atmosphere as it was electric with people with dementia getting up and happily dancing and singing…….
The raffle finished off with loads of fab prizes donated and then the last 20 minutes were spent with the ukelele band playing everyone out but not before they gave me and new Patron Mari some flowers

They should be very proud of how the event went and how many people turned up. I felt so happy to have been a part of it…..a wonderful group with Rosie and her army firmly set on improving the lives of people affected by dementia……..👍🙌⭐️

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

7 thoughts on “A wonderful event in Newcastle…..

  1. You look amazing in the photo, so happy. I have not heard of Hyperacusis but it is interesting that this may be another aspect of dementia we are not totally aware of. Other conditions do present with sensitivity to noise too so the help you have received could possibly be translated. Lovely blog Wendy..

    Liked by 1 person

  2. What a lovely day you had Wendy. It’s so true that one person with a passion can make a difference, and your Rosie has certainly done that. And I am glad the hearing aids are making such a difference. Of course, I had no idea that hyperacusis was a problem you were living with, in fact, I had never heard of it before.

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  3. Fascinating to learn about hyperacusis, and the effect of the hearing aids. Must be quite a marvelous change for you! Also, your point about hair touching the microphone is an interesting one, and I bet that really good doctor who fitted your aids would like to hear about your perception of that. I love that the Chrysalis event included kids, music and singing. And you did not once mention a ” banging head”! Aids at work, perhaps. Wonderful!

    Liked by 1 person

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