My hospital appointment finally arrived……

Yesterday, after a year on the waiting list, I finally had an appointment with the audiology department to test my hearing for sensitivity.

My GP knows my dislike of Hull Royal so had sorted an appointment for me at Castle Hill hospital closer by…..😊

My weather app said it wasn’t raining but I opened the curtains to grey gloomy rainy clouds 🙄….the weather man on the telly also told me it was raining…..🤪…….it really was……

Anyway Sarah was taking me and we trundled our way in the rain, parked the car, then proceeded to trundle through the maze of buildings until we found the right entrance… 😇

My first appointment for the hearing test was 09.20 followed by the Doctors appointment at 09.50. However, they were already running 40 minutes late so we settled down in our seats to wait. It was a nice bright airy waiting room with lovely artwork on the wall. I particularly liked the one we were sat by

We’d watched the people shouting names and there was a particularly unsmiley chappie and I told Sarah to come in with me if I had him……..Eventually my name was called, but it was a smiley face that spoke my name for the hearing test so I went in alone for that bit as I had in my head that it would be a tiny cubicle……it wasn’t, it was a large room, so Sarah could have come 🙈🙄

He started asking me loads of questions, which suddenly emptied my mind but luckily I’d taken my iPad with me and on it I’d written my words. So I simply read them out:

Not sure how much you know about dementia but one of my first senses to be affected was my hearing. I’m not going deaf, it’s just that certain tones of noise physically hurt my ears.
Now audiologists are recognising it’s affecting people with dementia and diagnosing them with hyperacusis and I suppose I’m here today to see if that’s what’s affecting mine.”

He was very open to listening and admitted he didn’t know anything about dementia and hearing……well at least he admitted it……

He did tests first on one ear and then on the other…..

Turns out I’m not hearing high pitches (normal with ageing) but the point at which it’s uncomcomfortable is very quick. With low levels I have a larger range but the range is still a lot smaller than normal before it starts to become uncomfortable.
He spoke about the existence of Digital hearing aids which can be set to block out certain frequencies but the doctor would discuss that with me.

He was a lovely chappie, smiley, friendly and willing to listen…….

So far so good………it was at this point that the system went slightly array…………

A doctor called me in…….asked questions…..and I read him the same blurb from my iPad…..he was also nice and smiley…….he eventually confirmed I had hyperacusis…….and then said he’d refer me to audiology for them to decide how to treat it……..well I thought he was audiology but apparently not😳🙈….he was ENT…….

So I have my diagnosis, I have a possible solution….but now have to go on another waiting list to wait for an appointment with the audiology doc…..🙈🙈🙈🙈🙈……hey ho….at least it’s confirmed now. Now I need to find some research to take part in…

For those that aren’t aware:

Hyperacusis is a condition that affects how you perceive sounds. You can experience a heightened sensitivity to particular sounds that are not usually a problem for others. This means loud noises, such as fireworks, and everyday sounds like telephones can feel uncomfortable and sometimes painful.

The main thing is that there’s something they can do……wonder how many other people living with dementia are going through this uncomfortable situation without anyone realising there’s something that can be done….? 😔

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

27 thoughts on “My hospital appointment finally arrived……

  1. Although I do not suffer from Dementia and don’t know close to me who does I find it a very interesting subject and really enjoy following Wendy’s progress. She is amazing.

    Liked by 1 person

  2. Thankyou Wendy. Everything you bring up benefits us in our caring role of those near and dear. The time will pass quickly and then your next appointment will be happening.

    Liked by 1 person

  3. Thank you Wendy. My husband has this but I wasn’t aware that he could get a hearing aid which reduces the amplitude of certain frequencies. Very helpful. I hope you get yours sorted out.

    Liked by 1 person

  4. Wendy, you’re a mine of information. I’ve never heard of this condition, let alone that it can be corrected. It might come in handy in the future, if not for myself then for friends & family. Really interested how you get on with the audiologist in the, I hope, not too distant future.

    Liked by 1 person

  5. This information is extremely useful Wendy and you have explained it so succinctly. Having supported people with hearing loss / sensitivity and dementia I was acutely aware that these finer details about digital aids had not been explained to them or their families. Audiology appointments in many cases left folks confused and not clear about the process if things were not working out well for them with their aids especially if they were new to them. Let’s spread the word Wendy. Xx

    Liked by 1 person

  6. Hello Wendy, I have been reading your blogs for a few months, since I finished your book. It amazes me that so many so called professionals need educating by you, still I suppose as long as they listen and learn that it is the best we can hope for. Keep up the good work ……. Barbara

    Liked by 1 person

  7. The ability of medical people never ceases to amaze me, when it comes to creating ‘handoffs’, extra steps on pathways and additional waits. It’s bewildering how you can have a test, get a diagnosis, and – just as Hope is peeping up to over the horizon – you then go on another list for a bit longer.

    I hope you get it sorted soon Wendy.

    Like

  8. Goodonya Wonderful Wendy!

    I need to get tested. My “bush mechanic” 🧰 solution is to often “wear” noise cancelling earphones, just to cancel the “incoming” noise, and enjoy some quiet – no music playing – music too can jar?!

    Thanks again for your post and wisdom👏✔️

    Like

      1. Do you have “noise cancelling” headphones? Mine are “in-ear” Bose brad, expensive but great, have a rechargeable battery in the cord. Music and phone calls are good and so is the noise cancelling capability. Look forward to your “hearing” next medical visit 😉

        Liked by 1 person

  9. Hi Wendy, my friend who also has young onset dementia suffers with this and some days it causes real anxiety. I will read your information to her when I next see her. Thank you yet again for taking the time to share this & helping us all. I hope your next appointment isn’t too long a wait. Take care x

    Liked by 1 person

  10. Hi Wendy, this is such an important issue. Thank you for raising the profile of hyperacusis, I really think it is something that needs to be better understood by all health professionals, not just audiologists. Keep spreading that word!

    Liked by 1 person

  11. One thing I have learnt as a wedding photographer is that meteorologists lie like politicians.

    Very useful stuff about your diagnosis though. Might be related to mum’s problems with her hearing aid and balance issues.

    And yes. The best doctors are honest when they are guessing. Which is far more often than most patients think.

    Great blog as ever. I hope the next wait is much shorter.

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.