On Monday the Daily Mail emailed me asking if I would be interviewed as part of their latest campaign:
“End the Dementia Care Costs Betrayal”
I’m always reluctant to say yes to tabloids. The language they use can be very negative and manipulative. Often they have tight deadlines and I knew I wouldn’t be able to fit in a visit from a journalist, so I declined suggesting other alternatives like the members of the 3 Nations Dementia Working Group who have far more expertise between them than me.
The return email was very kind, asking if I had a 30 minute slot to spare. There was something about the email that made me change my mind. Knowing it would get complicated I said I couldn’t be interviewed but I would write something if that would help. That would mean I could tap away in my own time. They agreed and today they published it in the Daily Mail.
A photographer called in yesterday tea time. Apparently I’d met him recently when he took some photos for something else! As usual, many photos were taken. So I was surprised they chosen one with my neighbours satellite dish coming out of my head – ha!
They sent me the copy yesterday evening to check through. I was more concerned with looking for the right language and was please to see I wasn’t referred to as ‘suffering’ from dementia. Some of my words had been changed but that’s normal as words have to fit the space etc, but on reading it now, I realised I missed out so much or should simply have said so much more.
I should have said how selling a house is one of the most stressful things we face in life, so imagine a family having to go through this at a time already filled with stress. The housing market is in a slump at the mo, so what if it doesn’t sell, putting extra stress on the family.
But more importantly what happens to those living alone, who don’t have family or have family who are detached and less than supportive? Who looks after their affairs, who makes sure they’re treated fairly? Are people left vulnerable? Forced to sell a house for peanuts simply to get the fees for the home?
I mentioned “Only the wealthy few can afford the luxury of well staffed, well supported homes.” Yet forgot to say how not all these homes offer knowledgeable and appropriate care for those with dementia, such is the state of dementia care.
Anyway here’s a link to the article on line – I did my best with the time available….I hope they ask my playmates in the 3 Nations as they could offer a far more in depth article…..