The Light and Dark of this Technilogical Era ….

I’m back!

Thanks to a super quick response from Apple Support – even the shop said they’d never got a replacement iPad delivered in such speedy time. It might have been due to all my lovely Twitter friends hassling Apple across the Twitter Network or they might just have been kind, I’ll never know. But all I thought when I got the email from them yesterday saying it was ready for collection was utter relief.

I lost a wonderful day yesterday, before picking it up. A day in Sheffield where we gave a live performance of Dementia Diaries. Any event would be well worth considering asking us to do a live performance as we speak the words of many people living with dementia, not just our own. All I know is, we had a fabulous time. Small audience but the quality was wonderful. I only have images left, images of smiles and laughter. Care home residents reading their poetry amongst some of the highlights. Shame I lost the detail but here’s a pic I’d of me Jacqui, Philly and Howard….

As many of you know, my ipad goes everywhere with me. Not only is it my memory, but it allows me to connect with the outside world……….

Some may see it as a luxury. I know I’m lucky to be able to have access and the ability to use the ipad, but when it’s stops working I’m devastated…….my world just seems empty. I type all my blogs at events in real time. Once I arrive home they’re complete and I only have the piccies to add. The reason I do this is to remember all the detail from these wonderful event. As soon as I leave them, the detail has already vanished from my memory, apart the the images that remain in my mind, of smiley faces, a situation, a hug…..all filled with emotion but lacking in the detail.

But my iPad is so much more. It’s my means of waking up my brain, or seeing what sort of day I’m going to have, with my morning routine of solitaire and scrabble.

The sadness and loneliness that has come over me recently when I’ve opened up my ipad and been met with a blank screen has been overwhelming as it means to me that more memories will be lost.

It’s probably the only time I panic. With a happy screen, I’m happy as I tap away recording all in front of me. The same happens when there’s a poor internet signal….the talk of 5G makes me sad as I wish everywhere had 4G first……..I always have a back up of a printed map as I got caught out with poor internet connection once and couldn’t find my way to a venue…….luckily it was the kindness of strangers that helped me.

Luckily I was with Damian when my ipad died the first time and he looked up how to fix it, otherwise I would have been lost. So much technology is being introduced, specifically for people with dementia in mind, but those clever inventing minds, have to work out ways to make it easy for us to understand how to fix these inventions when they break down, as they invariably will. Not sure what the answer is but sure their great inventive minds could come up with something.
And as I said, I’m lucky. I have people around me who can help. I have my wonderful world of Twitter who will always be there to help when things go wrong. So what of those, encouraged to use technology and have no one when it goes wrong? What if I’d been alone in the world on this occasion when my iPad died. It would have been the end of my independence which may sound extreme to some. But that’s how vital my iPad is to me. Are we encouraging people to rely too much on technology without safety nets in place?

Technology is truly wonderful and has helped me enormously through my life with dementia. It helps me on journeys, with apps of various kinds to help me find my way, the train app which tells me which platform I’ll be coming in on and which platform my connection will be leaving from; whether the train is late etc. Google maps which talk to me and tell me the way to venues.My new found friend, Alexa, which helps me get through a bad day; can put on the lights upstairs before I head to bed, reminds me of my medication. The tracker on my iPhone and iPad, which helps my daughters feel safe about my travelling and in turn helps me feel safe that they know where I am if I forget. My phone for the constant reminders of what to do when…..

My phone is wonderful, but is teeny weeny and is fine for basics, my iPad allows me to see more clearly and most of all, type.

I’m sure I’ve missed out many that I rely on daily

Technology is a wonderful thing, but when it lets you down…….well……….very sad……..

But no longer am I sad, my mood instantly lifted and I hugged my new iPad when I picked it up. On setting it up last night, I knew all would be right in the world again, once I saw Billy appear on screen…..and I gave it another hug……

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

15 thoughts on “The Light and Dark of this Technilogical Era ….

  1. Without the use of my laptop and mobile I lose much of my contact with the outside world. My ability to run YODA and carry out my advocacy work is also greatly compromised. I have just ordered a tablet so I can be more mobile with my IT. Such a lifeline! I’m so glad your ipad is now back home with you xx

    Liked by 2 people

  2. Hello Wendy, I have just finished your book and I am overwhelmed by your writing , i have learned so much and thank you for allowing so many of us to step into your life. For about 3 years now I have been taking part in a research programme for Kings College London called Protect into dementia, reading your book has reinforced how important such studies are. You are inspirational, your daughters must be so proud of you, thank you xx

    Liked by 1 person

  3. Can I ask Wendy
    When you look back at your blogs and re read them can you remember that event ?
    My mum reads the entries we put into her diary each day but when she reads it back she doesn’t appear to register doing what we have recorded
    Christine x

    Liked by 1 person

  4. Just a thought Wendy- I have always used my iPad for looking at the news, reading a paper etc etc . However , I now have a new iPhone which is bigger and I find myself using it more and my iPad less, simply because I can see it better! Christine

    Liked by 1 person

  5. Congrats on getting such an unusually fast response from Apple! And coming back to your blog so quickly. I am very impressed by your tech savvy!

    Liked by 1 person

  6. That’s a very insightful piece on our increasing reliance on technology. So glad that you had your ipad fixed up and you’re back to business as usual! Wel done keeping your cool while things took time to resolve, i can feel how tense and sad the those moments of uncertainty seemed from how you have expressed it so articulately. Am enjoying your tweets. Thanks for sharing…. 🙂

    Liked by 1 person

  7. Glad you are back online Wendy. It is an issue when people with dementia embrace technology which is good but have nowhere to go if it fails. Lovely picture of Billy.

    Liked by 1 person

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