My daughter telling her side of our story….plus…

Yesterday was the turn of my daughter Sarah to be in the spotlight for a change. As I said on my blog yesterday (Ithink!), both sides of the story are equally importation very different needs yet both needing support; no one side is more important than the other. So yesterday Sarah was giving her side of our story on Radio 4’s Woman’s Hour with the lovely Jane Garvey.

Sarah was soo nervous she arrived at my house 10 minutes early so I’d only just come downstairs from getting ready 🤣…..we arrived at the station in plenty of time to have several cups of tea but were very good and just had one😇 well I had one and Sarah had coffee (😱🙈🤐) ……….once we were on the train all was right in the world as we both had tea……😇

No trip across the Humber bridge today as we’d driven further down the line to pick up the train but there was the most amazing sunrise followed by torrential rain a few minutes later. Which just kept on coming……..!!

So no piccie of the sunrise but a selfie instead😊

Kate from Bloomsbury was meeting us at Kings Cross and we all piled into the taxi for the short but always long ride through the London traffic to the BBC. I wasn’t there just st for the ride today as I had a podcast to record with Delicious, the food magazine. So at least I felt I was earning my keep as Bloomsbury were paying for us both to travel.

Anyway we got to the station and Kate and then the taxi were waiting for us. Once we got through security Sophie and Paula met us in reception, and took us up to the green room and the waiting cuppa from Sophie😇. Jane Garvey soon joined us and after hugs and a catch up time for piccies☺️

They surprised me asking if we had to rush off as they’d like to record something with Sarah for the podcast☺️ magic😊

Sarah was whisked away and me and Kate were able to listen to the programme …..

Sarah was sooooo nervous……bless……but I knew Jane would look after her.

Sarah was second on……after a child poverty piece – it seems wrong that in this day and age, in this rich yet messed up country, that we have children and families going hungry. 😞

Jane played a clip from my interview first and asked Sarah how she felt after hearing me. They spoke of the changes in my personality. Sarah spoke of the grief at the loss of my old character but also the joy at all I’m doing now.

The subject of her nursing skills being a help or a hinderance to supporting me. Sarah spoke of how she often thinks she is doing right, especially when we wrote my lasting power of attorney. Sarah assumed I would want the opposite because of her nurse training.

At the end of the day, I have capacity, and Sarah let’s me get on with things, but is always there when I need her.

Sarah might have been nervous but she was amazing sooooooo amazing. You can hear it here:

Sarah is about 10 minutes in and both of us are at the end……..😊

Once the programme had finished we recorded an extra piece with us both in conversation with Jane…….she is such a wonderful person…..😊

Kate then surprised us as Emma had sorted a joint interview for BBC Radio London 😊 straight after our time here…….. Sarah just nodded 🤣

So after a cuppa tea we went across to BBC Radio London and quickly shown upstairs where we waited a few minutes..

We were taken to the studio pre record an interview with Jo Good. I apparently was on her programme last year for my hardback version😳🙄 funny, I remembered the waiting area ……must have a piccie or something……..

This time me and Sarah were doing a double act😊. Jo was so nice, so smiley. Havn’t a clue what we talked about except Sarah said Jo mentioned how I hadn’t changed at all in a year. Sarah made the point that I’ve changed in many ways and how it underplays the daily struggles by saying I’m the same – glad she highlighted that, huge brownie point😊

So for another piccie……

We went back to Bloomsbury. We had a little while before the final recording of the day so me and Sarah went to hibernate in a café for a while and had lunch, well me another top up of tea🙄

We headed back to the office where Gillie from ‘Delicious’ magazine podcast was waiting for me.Another nice interview followed by my last cuppa tea in the conservatory where Sarah was waiting for me but not before a last piccie with Gillie from Delcious…

The whole gang who look after me at Bloomsbury popped down for a hug and catch up. Emma, Hannah, Jasmin and Alexis, all coming to say hello..wonderful

Totally wiped out, exhausted and running on automatic, we ambled our way in the fresh air back to Kings Cross.

I might have been running on empty but I felt very lucky to have the opportunity of such a wonderful day………..☺️…….and because today was snuck in as an extra, I’m back down in London again tomorrow……..😳🤐😴….

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

11 thoughts on “My daughter telling her side of our story….plus…

  1. Sounds like a busy yet productive day! I love how Sarah’s perspective as a nurse is different from yours. My sister (a nurse) and I (a teacher) have different approaches to our dad with Alz and it is good to read that others do too. Thank you for allowing yourself, and Sarah, to be honest and forthright about how Alz is affecting you. It is a blessing you are giving your daughters that they are allowed to be honest about Alz in their lives. My family is similar but I know so many who are not.

    Liked by 2 people

  2. Different perspectives are interesting. In my POA I didn’t want my kids to think they had to rush from the 4 corners of the earth if I was on the way out. (in part because I couldn’t for either of my parents) But one small voice said ” But what it we WANT to!!” So its fine to have a view, but you can’t force it on anyone, and others views might for good reason, be different. I love seeing so many Wendys in book shop windows.

    Liked by 1 person

  3. Hi Wendy. Just listened to the podcast. Sarah was brilliant and you both managed to convey so many important messages for people who may be coming to terms with a similar diagnosis.
    I appreciate the reference in this blog to Sarah’s comment at Radio London that you have changed in past year; there must be constant adjustments to be made by you all.
    Well done to you both.

    Liked by 1 person

  4. Wendy, I bought your paperback even though I have your hardback as I thought I had read that there would be questions for a book club and some additions to the paperback. Mercy, without reading the whole book again I can’t find any additions. Are they there?

    Liked by 1 person

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