Bitter Sweet Success……..Poem

Right now I’m living in a strange surreal world
A world where people are kind
Making kind comments
Doing kind things

My name up on posters
In towns far and wide
On radio and press
My name appears constantly

Almost makes me sad though….

Strange how dementia has brought me success…..

Ohhh that it was for another reason…… a different lifetime

About wendy7713

On the 31st July 2014 I was diagnosed with Young Onset Dementia. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

24 thoughts on “Bitter Sweet Success……..Poem

  1. Wendy, it’s bittersweet what this life has thrown at you, even though you are keeping so many of us going on this journey, of course you want your ‘real’ self back again. Thank you for your lovely poem x

    Liked by 1 person

  2. Hello Wendy, I do see what you mean but, from another perspective, you are spreading information, bringing light into a dark world and, in the process, I would guess, helping yourself cope with this most horrible of diseases. How amazing to be known for doing such good whilst suffering. I salute you.

    Liked by 1 person

  3. Dont be sad Wendy. Lots of people come into the public eye in a similar way to you. My dad had Alzheimers and passed in 2005 aged 78 and ever since then I have been concerned that I may also,at some point, contract the disease. I am 63 myself. I have just finished your book and I now feel completely different. Im full of positivity and so grateful for you putting yourself forward as you have. You have brought joy to others before you were thrust into the public eye and you continue to do so now that you are in it. Thank you again. Much love to you and your family x

    Liked by 1 person

  4. Wendy, It is not the dementia that has brought you success, but your willingness to face the challenge. As my wife Sylvia (now eight years into Alzheimer’s and confined at home to bed) has said throughout her life (she is now 82): “In life, when we face a challenge we have a choice–accept and face the challenge or deny it and pretend there is nothing wrong.” What you and Sylvia both have in abundance is the combination of courage and honesty–the courage to be honest with yourselves and others, and face the challenges that life brings in its many seasons.
    All the best

    Liked by 1 person

  5. Just thinking about who anyone is at different times of life. Thinking too about how we understand that in different dementias one may at times believe you are the you you were at some different time. So can it be useful now to develop cameos of the person one was then from the view of those who knew you then? Care staff may not even have been alive then, but something like your photo time line helps show previous lives and interests.
    Its like a seesaw I guess where folk don’t necessarily recall recent things but in habit past times. A conundrum.

    You really get me thinking!

    Liked by 1 person

  6. Dear Wendy
    Your poem saddened me ..
    Please be heartened that you have made so many of us no longer afraid of dementia ..
    You have opened a door into a previously unknown dimension ..
    We know what to expect and how to prepare ..
    I live in Norfolk and thanks to you we have dementia-friendly films to see, places to eat etc which did not exist before you had the courage to start your blog and write your book ..
    You have held our hands and given us and our families knowledge of the disease that, before you terrified most of us ..
    I thank you from the bottom of my heart ..
    Best regards

    Liked by 1 person

  7. Beautiful, Wendy. Your willingness to share your journey is truly a blessing for all of us who have loved ones experiencing the same and trying to figure out how to deal with it. Thank you so much.

    Liked by 1 person

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