Dementia Diaries recordings……..

For those who havn’t found or heard of Dementia Diaries. It’s a web site where people with dementia, including me and all my playmates,  record our opinions or feelings about anything and everything.

Rachel and Philly often give us a topic to speak about and apparently they asked for our views on what the right housing means to us……I say ‘apparently’ because Rachel tweeted a recording of me doing just that, but I remember nothing about recording it!😳

But I know it’s me, it’s my voice. So here it is if you’d like to listen to my way of remaining in my own home, which I call my ‘haven’ and the adaptions I’ve made.

https://dementiadiaries.org/entry/10135/what-does-the-right-housing-mean-to-me

We’re always looking for people to transcribe our ramblings. They’re only short and there are detailed instructions on the web site. Lovely people from all over the world have transcribed for us but we’re always looking for more. If you’re interested just click on ‘How can I volunteer to transcribe diaries’ on the black strip at the top of the page.

You can also hear lots more of my playmates……..lots more of our thoughts and feelings. It’s a great resource for anyone affected by dementia and a learning tool for professionals……

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

4 thoughts on “Dementia Diaries recordings……..

  1. Such useful comments, Wendy. They are not only insights into how someone with dementia might perceive things but also good tips for me on things that I can do to make things easier for my mother. Keep up the good work – you are providing a really useful service!

    Liked by 1 person

  2. Hello I’m Lynne and at 50 was diagnosed with early dementia . I have a husband and 3 girls . Now 17 14 and 12 . I was l (let go ) from the Itu at Matre when i was 48 and was treated with antidepressants . I had been at the docs since 2013 saying i couldnt concentrate at work but was always told it was depression . It was only after i had a total brekdown they finally listened and tested me to find dementia at 50.

    My husband now works so hard to try and support us but it really isnt enough and all our savings are dwindling . I get no help as no formal diagnosis has yet been confirmed . I have to wait till febuary to see a neurologist for that .
    I can still drive and take the kids to school but i can’t multitask as i forget what i was just doing before so i can no longer work in the nursing profession .
    I try and have the best life i can for the kids but at times i feel so inept inside . I make them aII laugh but they dont see the tears i weep .

    I dont know my future but hope i will never forget my lovely family.
    I loose my things all the time now never knowing where I’ve left them. My kids are good at finding things for me now.
    I feel too young to be in this position and it cost me my job before anybody decided to listen so i was never able to take early retirement like so many others i have read . I wlould love to hear from any other people who are in my position if there are any more as i feel very alone at times and would love to hear from you .

    Like

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