Before I start todays blog, I’d just like to say how overwhelmed I’ve been after my blog yesterday. The support and love that has come my way so far has been phenomenal- thank you sooooooo much.
And so to todays’s very different blog!
Now the world is finally getting back to normal after Christmas I thought I’d try and explain why I hate that empty period so much…….
Most people would love the chance to simply sit and do what they want, relax and take it easy…….but for me, any prolonged periods like this are scary…..I never get bored but I feel myself stagnating….
Sitting and simply doing nothing becomes the norm and is wonderful …but soooo bad at the same time. How can something be so wonderful yet have such a negative impact ? But it comes with a warning sign, that dementia is cruelly seeping in and taking over. It’s so cruel as it lures you into a false sense of enjoyment.
Yes, sitting quietly is certainly good for the brain when all else around you becomes too much, too confusing. But to allow it to become the norm allows dementia to take over, to win the day.I often see and hear of people with dementia not wanting to get up, to move, to do anything. They’re happy to just lie, just sit. I totally understand that, as over the Christmas break I became that person.
A few days are fine, challenging but fine….2 weeks really isn’t…..
I love just lying or sitting with my eyes closed. The lack of visual stimulation calms the brain and relaxes it. It becomes comfortable, feels safe. I can relax so much that I probably appear to be asleep but my eyeballs are wide awake behind my sleeping eyelids….so much so I’ve probably been practising mindfulness before it even existed……
I’m sure many of you have experienced that long holiday from work and how hard it is to return? You eventually get into the routine again. The holiday becomes a distant memory. Well for us or certainly for me, it’s long lasting if I don’t do something about it.
Even on normal days, when I’m at home, I always make myself go out into town on the village bus, but even that routine went over the holiday period as the village bus didn’t run for days.
I always make myself get up by 07.30 and get straight in the shower as that’s one of the most difficult tasks of the day out of the way. But that became harder as there was nothing to spur me on, so I’d lie there with my eyes closed not wanting the peace disturbed, but that really isn’t me as I’m a morning person and always have been. I had to make myself get up as normal – really not me. I know many people like a lie in but I’ve never been one.
i find ‘routine’ one of the best ways to stop me getting confused with time, not feeling discombobulated unnecessarily….
I know I’m so lucky in that I get asked to do lots of events, lots of talks and long may it last and I do have to work at keeping people wanting me. But even for me, the post christmas period left me fighting for normality to return before dementia settled my brain into that relaxing false sense of security …..of doing nothing, that lack of social stimulation..
I hope that makes sense…..I’m not saying, sitting and enjoying a moment is wrong or as a means of alleviating the fog; what I’m saying is, the danger lies when that enjoyment of sitting becomes the norm and the periods of nothingness are prolonged.
I know I’ve waffled saying all this but it was hard for me to explain.
So don’t let me stagnate, don’t tell me to take it easy…..encourage me to move, encourage me to do…..or maybe its too late for some……I don’t want to become just a shadow……not yet…..
P.s. …I even forgot how to catch a train yesterday…it was my first for weeks and I stood on the platform with everyone else but surprisingly was the only one who stuck their hand out to stop it…..just like I do with the village bus…..🙄🙈🤣😂🤣