Yesterday I trundled to my favourite university, Bradford. They have a wonderful set of lecturers and students along with a great culture of inclusivity.
Clare Mason had emailed me asking if I would be prepared to make a short video, along with others from their group of experts living with dementia and supporters.
They have been doing some work for Health Education England and want to create a set of videos to be embedded in their online training sessions. This would help make the training real with the lived experienced included and have a greater impact.
I’ve often said that academic ‘Experts’ in their field understand the theory and the science behind dementia but lack the reality knowledge. This in turn, when delivering training, misses out the vital component of lived experience. So Bradford aim to fill that gap, giving their online students a more rounded education.👍
My part in this was to provide my thoughts around working, paying mortgages/bills, and experience of starting aricept and managing medication.
The morning started off very misty murky but at least the trains were on time, which is a bonus lately. Autumn is clearly upon us….
Anyway, I got to Bradford and ambled up the hill to the Uni passing by the square which had been decorated. All the trees had poppies hanging amongst their branches….❤️
Claire met me outside as there was a picket line in full force with drums and music screaming out…….it didn’t bode well for recording….we went and said hello to the team in the dementia studies office and Georgia made me a cuppa tea before we headed off for the recording. Others had done the same the day before and that morning but the noise was affecting the recordings. But we were keen to give it a go and just see what happened…..
Clare asked me questions about employment and the impact a diagnosis had on me and my girls.. I certainly didn’t want to retire straight away as I wasn’t ready. I still had a lot to give. But eventually I had to. I was trapped in a catch 22 situation. I had a mortgage so couldn’t afford to reduce my hours or take a less stressful job as I wouldn’t have been able to afford my mortgage. Instead I had to retire in the end and use my pension to pay off my mortgage and move to a cheaper area so I could afford to buy a house……..I realise I was very lucky to be able to do this. Others might not be as fortunate☹️
I’m also lucky – being a glass half full person – as I could have wallowed in having to leave my forever home in York, but instead, saw moving to my village as a new adventure.
Personality plays a huge part in dealing with a diagnosis.
Loads of other questions were asked, including medication issues for the pharmacy module. However the recording didn’t go to plan and took a lot longer, due to various ‘noises’……..
The pickets blew whistles, banged drums and played music, which we could hear in our room in the distance. Then a digger decided to make regular visits to the flower beds outside 😳. To top it all people kept passing by the usually quiet area on their phones and chatting loudly.
The funniest had to be someone bursting into song somewhere……..🙈
Hey ho…….it was very good and the videos, once sorted, will enhance the learning perfectly.
We’re all individuals with individual personalities so healthcare professionals need to take the time to get to know each person and treat us appropriately, be it with positivity, empathy or direction………
I was due to arrive home in daylight but, once again, the trains let me down. I have to catch 3 trains and the one from Leeds decided to run late, meaning that I missed my connection in Hull🤦♀️…….
But at least the Humber looked wonderful in the sunlight….
If I’d have waited for the next train I would have missed the last village bus, so instead, decided to go the scenic route on the bus which, even though it takes forever, drops me off at the end of my road……..so at least I got back to familiar territory in the dark…….🙄