Meeting my own playmates in York….

After Fridays trundle down to London to meet new playmates, on Monday,  I was nearer home and was with my own playmates of Minds and Voices…….

Due to bus timetable changes, it’s now harder for me to get there, but luckily my son in law, Stuart was driving up to work in Newcastle and he offered to go via York to make it easier for me😍

I had plenty of time once Stuart dropped me off at the Park and Ride so trundled into York and ambled to the station where I was meeting Damian. I had time to go through the Museum Gardens and take a piccie………

The taxi pulled up and I joined Damian for a catch up to Lidgett Grove. Anna was already there and had put the tea urn on – immediate brownie point. Anna has just joined us as a helper.

I did my job as chair monitor before settling down to my first of 3 cuppas before everyone arrived – not allowed to have a cuppa until I’ve done my job…………..😇

I havn’t been able to be there for a couple of months due to transport stuff so it was lovely to catch up with everyone as they all started to trundle in with smiles on their faces. There were new faces and old….wonderful😍

So once everyone had their cuppa we started………it was lovely to have a full table…..we went round and said hello as some hadn’t met each other before.

Peter said’ “it gets bigger and better every time and so good to meet everyone”

Anna, our new helper said – “whenever I hear this group all I can hear is laughter so I decided I wanted some of that”

Several in the group had moved lately and all spoke of the confusion it caused. Peter was saying how he’d moved into a bungalow and kept looking for the stairs………

More people turned up and we had to get an extra table out…….❤️

Here we can arrive and forget or share our troubles feeling safe and unjudged and the best thing we share is laughter…

Damian then went through our course…….and told us how he and Howard went down to London to promote the course at the Royal College of Psychiatry…When diagnosed Howard had sat at home and vegetated until he heard about our course. By attending he learnt how there was so much more life to live and now trundles all over the country.
We then watched the film promoting the importance of our course, created and delivered by people with dementia as course tutors. This is aimed at commissioners urging them to commission our course in any area but also here again in York.

Here’s a link….

Damian is looking at formalising our group, so having a Chair, Secretary and Treasurer……some people in the group were happy to consider the roles. I didn’t think it appropriate for me to stick my hand up as I’m not sure how often I’ll be able to get there due to the bus times changing……It will enable us to apply for grants more easily as we’re fast running out of money. We were given funds a couple of years ago and they are almost exhausted so we have to think how the group can be maintained…….we need to get money from somewhere to keep Minds and Voices alive as it would be very sad for the group to have to stop through lack of funds……..☹️

The thought of Minds and Voices having to finish depressed everyone so Damian got the Twitter feed up on screen and we posted some tweets to lighten the mood.

The regional mental Health services now has a new Head who is keen to use Minds and Voices for our course as she said they’re diagnosing so many people with nothing to offer and would love to signpost people to our course. But for that, we need money in our coffers……..

I could tell the thought of Minds and Voices finishing was niggling everyone and causing anxiety but Damian tried to reassure people that he was confident we’d be ok. It’s always to do with money….😥

Molly, who has just been diagnosed and hubby Tony told us about 2 very formidable women turning up on their doorstep and being very unprofessional about a course they ran about Cognitive something or other………very bad………and a case of ‘being done to’ and being prescribed for us…….. as opposed to our course………led, created and delivered by people with dementia…..

We had a stretch of our legs and got another cuppa before the last 10 minutes before I had to leave to get the buses home…..

Damian told everyone about Dementia Enquirers – the grant from the Big Lottery for Innovations in Dementia. People with dementia lead the research and choose the research topics and do the research and we may ask Universities to help, not the other way round….AMAZING………❤️……….and we’ve got our first meeting before Christmas….

He finished off by talking about the event in Nottingham which I’m already attending. They’re trying to promote the creation of DEEP groups in the city…..and for a few from Minds and Voices to visit the new group in the New Year……..

Nice that we finished off with a positive………

Sadly I had to leave all my playmates to enjoy the rest of the meeting…..but managed to take a piccie on my way back to the bus across the river…..

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

12 thoughts on “Meeting my own playmates in York….

  1. Dear Wendy, I read your book and found it very helpful and insightful, sharing the honest reality and at the same time hopeful and humorous. I’m a geriatrician practising in Switzerland and would like to recomend the book to collegues and patients that I newly diagnose with dementia. However the book hasn’t been translated into German as far as I can tell? All the best for your journey, Jane Morgillo

    Liked by 1 person

    1. Hello Jane, yes m it is due out in Germany. I thought it was imminent but not sure of the date or whether they’ve had to change the title as many countries have as it doesn’t always translate well.x

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  2. Hi Wendy, I have read your book, and I read your blog when I can. My mum had dementia when she died age 87 in 2012, and I wish I had been better able to understand everything at the time and help her more. I have learnt so much since then through volunteering at my local Alzheiners Memory Cafe, reading up on all the reasarch news I can find, and your book is uniquely inspirational and informative. Dementia took my mum’s speach ability very quickly, leaving her unable to communicate how she felt, which didn’t help matters. My father definitely has the early signs of dementia now, but he is almost 98!

    You mention a meeting in Nottingham in your blog. Could you tell me more about this, and any other initiatives in the Nottingham area?

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  3. Hi Wendy, I have recently finished your book. I have read many others dealing with Dementia but yours opened the door for me. I lost my mom back in 2006 to Dementia, in a matter of a few months. She was only 78. Now I can see that she had been dealing with this for many, many years. You and your group do wonderful work and I only wish I had known more back then. Continue on doing what you do! And thanks for answering many things I never understood.

    Liked by 2 people

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