The Poem from the London DEEP Gathering……..

Following on from Mondays blog about the gathering of people with dementia in London. I promised to print the poem I wrote from the words people selected.

Rachel had the brilliant idea of buying an unloved copy of Charles Dickens, Great Expectations, from a charity shop and turning it into a way to get everyone to speak at the beginning of the event …… genius idea…..

Each person had to say their name, where they were from and then choose a word that was special to them from their page of the book.

Here are the words again

Rachel then said we’d take them away and create a poem. However, over lunch, and due to the noise being a tad overwhelming for me, I went into my own little world and wrote the poem there and then.

Looking at it now, I didn’t manage to use all the words, but most of them. You can either listen to me reading it out on Dementia Diaries here:

Or read it here:

Carry a notebook to write your thoughts
To rage and rampage
And not be alone
The Hope Love and Respect
The opportunity dementia brings

But still with a splendid smile
Of joy and peace
A curious opportunity
To share ideas, knowledge
And simply to understand

When faced with objection & unmanageability
The immensity of humanity
The beauty and forgiveness shines through
The guardians, the spirits
In their communicative way

Ask ‘Do we remember’?
That new chapter in our lives?
Then something stirs, our guardian angel reminding us
That, after all,
we’re still the same person

Still a mum fulfilling
Communicating ideas
Influencing, forgiving others
With patience, respect and love
After all, we’re still the same person

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

4 thoughts on “The Poem from the London DEEP Gathering……..

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