What keeps me going…….?

After such a busy few months I finally had my last book event last week. I’d had a wonderful time and loved every minute of it. But it’s taken its toll. I’m empty and exhausted. I know I mustn’t stop or dementia will creep up on me so most of this week will be spent simply typing and pottering…..

I hope you know me well enough to know I’m not saying this for your pity.

The other day I set off travelling home at 9.30 and got home at 6pm, totally exhausted. So what keeps me doing what I do when faced with such challenges and exhaustion?

When I ask 200 children who knows someone with dementia and 2 thirds raise their hands

When a child writes that they won’t get upset when grandad forgets their name, they’ll smile and give him a hug all the same – because they heard me say it

When nurses eyes light up and make notes on the basics……because they heard me say it

When someone on Twitter says my words will change the way she practices…..because she read my blog

When a Gp questions my ability to speak articulately and be inciteful….because they’re in the audience – but at least I can respond and hopefully change their way of thinking.

When those who have partners thank me for giving them ideas on how to help their partner…….because they heard me speak

When someone comes up to me afterwards and says, he and his wife had never talked about her dementia but he was now going to talk to her in her care home and hope it’s not too late

When my Gp says she’s now read my book and has advised others in the practice to do the same..

I could go on, but I’ve learnt that I live in a very tiny bubble of people who know and understand and the rest of the world is yet to be educated.

When no one is surprised, when no one learns something new, when no one reads my blog or attends my events because the world has got it……..that’s when I’ll stop.

Mmmmmm me thinks that wont be in my life time. So I’ll hopefully die before dementia takes hold and prevents me doing all this, otherwise I could well be in the hands of those who don’t get it…….what a nightmare thought that is..

I’ll continue to exhaust myself for as long as people listen and learn. As I’ve said before I’d rather die of exhaustion than dementia. My daughters are with me on this and I couldn’t do it if they weren’t there for me.

I child writing this keeps me going……

About wendy7713

On the 31st July 2014 I was diagnosed with Young Onset Dementia. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

22 thoughts on “What keeps me going…….?

  1. Ah Wendy, again you have hit the nail on the head. You are making SUCH a difference in so many lives of so many ages. All this because you have been diagnosed with a dreaded disease and decided to learn, participate in research and share what you see. Thank you👏🏻💐🌸

    Liked by 1 person

  2. Wendy I think you are amazing brave lady and you give so many people hope for the future. I get my results tomorrow finally and whatever the outcome I’m no longer scared like I was. As following your blog for over a year I now know it’s not the end of the road but the beginning of a new journey!!
    Thank you xx

    Liked by 1 person

  3. Having just read your book I am only sorry that I had not had that insight many years ago to help in my understanding of my mother’s difficulties. I am however buying copies for my children in order to help them when dealing with my own lapses. I found your humour and cheerfulness so uplifting when reading your story and am sure it will help them and reassure them that their loving mum is still very much there. Thankyou

    Liked by 1 person

  4. Thanks for summing it all up, Wendy. You’re spot on. Like you, am feeling totally drained today, but am heading off to Auckland to present at the Alzheimer’s Association of New Zealand’s Conference tomorrow. I know I will be replenished by my fellow advocates, and inspired by the presentations of those who get it. Have a rest today, my dear to prepare yourself for what comes tomorrow. X

    Liked by 1 person

  5. I believe I should be on commission for promoting sales of your book. Since reading it I have “sold” 9 copies: one to my Dad, one to my friend who’s Dad is in moderate to late stage dementia, one to a person I talk to on a dementia forum who’s wife has young onset dementia, and Mum’s carers. I’ll continue to promote sales of your book. It’s simply amazing as are you, Wendy.

    Liked by 1 person

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