A Huge Hug at the Arrival of September……

August is my least favourite month of the year, when routine changes, my calendar goes quiet and I’m filled with dread of what dementia might do to me. But now September is here and I’m feeling much happier.

When I wrote about my dislike of this summer month I was overwhelmed by people’s offers to help, even from total strangers. But I didn’t write it because I wanted sympathy – I never want sympathy – I was just saying how it is.

It’s the disappearance of routine that is the hardest element. The lack of children walking to and from school to signal the time of day; the DJs on the radio going on holiday; my calendar lacking in its usual business. For me it’s a strange month as I come to love just sitting. I live upstairs during the day when I’m at home. Snuggly sat in my bed with my iPad and everything I need around me and the large window which looks out onto the tree tops offering a birds eye view of the world. But, as nice as that is, I can hear dementia laughing at me, rubbing its hands with glee at being given the opportunity to filter through the peace and settle down beside me………

I remember my lovely friend, Chris Roberts deciding he’d had enough and wanted to just sit and enjoy the silence. But it was his equally lovely wife Jayne, who insisted that giving up was not a good option for wither of them. As she said, ‘I’m not ready to sit at home with dementia’. So it was that Chris continued and I’m sure he has no regrets on doing as he was told on that occasion -ha!

We’re stuffed if we’re busy, as exhaustion takes over and we’re stuffed if we’re quiet as dementia is given an open door. We can’t win. But I know which I need to prefer – to be busy. The trouble is during August with the lack of business, I began to enjoy just sitting in silence….☹️

Looking at my blogs in previous years I stopped writing but I know better than to do that now and have been blogging all August too this year so thank you again to those who have taken the trouble to read them and for your kind comments. I simply daren’t stop writing now as not to be able to type would be the end for me.

Common sense would tell anyone that I needed to ease myself back into the busy world….. gently…….mmmm…..well I think common sense was absent recently as I turned the calendar over to September to find it stuffed full of lovely events and I only have a few empty days in the whole of month😳…..ooops🤓

So I might have a few wobbly days coming but that’s so much better than sitting handcuffed to dementia.. I have to keep reminding myself of that.

So thank you to those who helped me through August, especially my wonderful daughters who are always there for me and thank you also to my wonderful Twitter friends who have kept me company throughout this miserable month…….

So now to planning and writing talks again and some wonderful trundles lay ahead……..and of course, it’s the start of World Alzheimer’s Month…..

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

13 thoughts on “A Huge Hug at the Arrival of September……

  1. I’m a new subscriber to your blog. I loved your book, and I am enjoying reading your blog. My mom has the beginnings of dementia, and you have helped me understand so many things about it and her. I’m glad you made it through August and are going into a productive September. You seem so amazing!

    Liked by 1 person

  2. Hi Wendy, firstly, thank you for wiritng your blogs. I read them with great interest and often retweet them in my business social media (DES and VIDA Training). This one particularly struck me as something I would like to incorporate in a blog for World Alzheimers Day later on in September – I am one half of the VIDA Training partnership (Vision Impairment and Disability Awareness Training) and wanted to link it to my business partner’s feelings about holidays/change etc (my business partner is blind) and about the hidden impacts of different conditions and impairments. I wanted to check if this would be ok with you? I am happy to write it and share it with you first if you would prefer? Our website is http://www.vidatraining.co.uk if you wanted to check us out first. Thank you again, Vicky

    Liked by 1 person

  3. Really enjoy reading your blog Wendy. I think you do amazing and love to hear all the tips and tricks you use to keep the dementia demon at bay for as long as you can!

    Liked by 1 person

  4. This is such a great resource for people to read. It’s comforting to know there are days that are both good and bad for everyone. Also, that you share anedcotes of your friends to reinforce that! Glad to hear that routine is back, the children have returned to school as have your favourite radio dj’s. Enjoy your September.

    Liked by 1 person

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