The year I was diagnosed, I donated my brain to the Newcastle Brain Tissue Resource centre at Newcastle University. After all, how are we going to learn about the brain if people don’t donate…..? We can’t make a better world for future generations without research……
They are world renowned and have supplied tissue to ethically approved researchers who are looking for that vital clue….
It is part of the Brains for Research Network funded by the Alzheimer’s Society and Alzheimer’s Research Trust.
Each year I have a visit and yesterday it was June Edwards who came down to see me. She had three people to see in my area and I was her last so she was a little early which suited me fine.
She started by telling me how she’d read my book last week and had read it in one sitting! She said some very kind things and ended by saying that every trainee doctor and nurse should have to read it……..☺️
Then onto why she was really here……
The assessment part of the visit has been funded for a further 3 years by the Alzheimer’s Society and ARUK. Due to the extra funding there’s a bit more to do, but that makes perfect sense…..The extras include checking blood pressure, hand grip strength, a short walking test and reading a list of words.
The blood pressure is taken 3 times whilst sitting and 3 times while standing to check the vascular health; the hand grip is tested 3 times on each hand; the walking test is only over 8 feet and is timed, and finally I have to read a long list of words………..
But before all these extras there was the usual mood tests and then memory tests……..still didn’t remember the 3 words and still didn’t remember the name and address🙄
We went through what’s changed in the last year…..although I couldn’t remember what I could and couldn’t do a year ago – ha! So June just asked me questions about what I can and can’t do now.
The whole process must have lasted about an hour but was good fun.
If you havn’t thought of donating your brain, take a look at their website. Each region has it’s own Brain bank. Mine just happens to be Newcastle….…. If you live in the UK, the details are here:
and I’m sure something similar will exist in other countries.
After all, we can’t change the future without research……..