Repetition of Symptoms……..

Following on from my blog of yesterday – how I shortened my talk by just talking about symptoms and how I outwit dementia……I’m so glad I did.

I’m always thinking, ‘people must have heard all this before’ and am worried about repeating what they already know. But yesterday showed how so many people still aren’t aware.

After all, when you’re diagnosed, you have that clinical input of medication, if possible, but then what about the practicalities? No one, just no one, tells you what symptoms might affect you. Yes, we are all different, yet we all experience things in a different way, but there are common aspects, common traits, similarities…….so why aren’t we warned and told how we can adapt?

When I was first diagnosed and started to speak out, I naively thought that everyone knew our symptoms, the senses, visual peculiarities, gait – I could go on forever…..but I soon realised clinicians didn’t go through our symptoms because they didn’t know what they were!!! I remember being amazed and confused by their lack of detailed knowledge – I suppose I still am as there is so much they can do with that knowledge to help others….but sadly most healthcare professionals only understand the medical model and not the reality of dementia….

So now I always make a point of assuming no one knows anything and it’s surprising how many times that is the case……hence why healthcare professionals and family members were making notes yesterday….it was the first time they’d heard much of it…

They can offer us no cure so why not offer us adapting techniques?……..the simple cheap solutions that can make our life easier and calmer….yes, this goes away from the medical model of care and come under the social model of care….

Teach us about colour contrast, teach us about tips for when we hallucinate, the fact that our senses can be affected, teach us tips around the home……..all things that will help the whole family cope easier with dementia…..

Healthcare professionals can’t offer us any treatment, so why not offer learning opportunities. What better people to talk to than others with dementia who have leant tips and tricks on the way in this cruel game dementia plays with our brain…….just like we did at Minds and Voices with our 6 week course which the local mental health authority thought would never work……….mmmmm…

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

12 thoughts on “Repetition of Symptoms……..

  1. Where can we get a copy of your tips and tricks as they are not on this blog. We were at the memory clinic yesterday and I was asking that question from the OT. They referred us to Age UK. You are amazing to maintain your independence, keeping going.

    Liked by 1 person

  2. It’s unbelievable how little the professionals comprehend this disease, well done Wendy for explaining to them the practicalities of day to day living with it. Hopefully your talks will inspire them all to spread the word and educate their colleagues, xx

    Liked by 2 people

  3. Thank you for your blog Wendy. My husband was diagnosed with vascular dementia in Dec-though there were indications before then. Unlike yourself he can’t seem to talk about it so I feel I am guessing such a lot about what is happening to him. I get such a lot from your blog and can spot things you discuss. I must re-read your book for hints and tips!

    Liked by 1 person

  4. Like you said Wendy it’s not rocket science so why don’t they put a little workshop together where people in this dementia boat can throw a lifeline to each other 👍 I love you blogs they always make me feel inspired. Thank you!

    Liked by 1 person

  5. I don’t have Alzheimer’s or dementia, yet. I take care of my dad who does and I’m pretty sure my mother is starting to show signs of onset. Though I’ve worked with people who had Alzheimer’s in a nursing home setting years ago, I’ve never really been exposed to all the symptoms and features in such an intense way. Reading your blog helps.

    Liked by 1 person

  6. As always on the point dear Wendy, although this is a brain disease nobody tells you of the physical things that happen. Much love veronica and christopher

    Liked by 1 person

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