Design School for people with dementia….

So yesterday saw me heading to Birmingham for an overnight stay. I’d actually snuck this one in as Tuesday was supposed to be a day of snuggling but I couldn’t resist the opportunity, and why? Well I would be seeing my dear friend Agnes Houston.

Agnes was the first person with dementia I remember meeting when I was first diagnosed. It was at my very first event in York. I was in awe of Agnes and it was she who showed me how there was still so much living to be done. It had such an impact on me that I recount the meeting in my book. I saw her quite a few times after that but don’t think I’ve seen her for ages, so when she emailed me about this event in Birmingham I had to fit it in somehow…….

It’s been quite a mission though as the following day I have an early start in York🙈 as it’s an event I’ve played a very small part in organising…..so I couldn’t opt out of that one either…..but the weekend and rest days are not far off……I keep telling myself🙄

Anyway, back to yesterday….after yesterdays none stop deluge of rain it was a relief to see it was dry today. The Humber was very still and calm as we trundle by…

I was heading to Birmingham International for a Dementia Design school organised by Dr Julie Christie, from Dementia Centre, Hammond Care. They’d sorted out my travel and someone was going to meet me at the station.

I hope Agnes realises the effort I’m going to 🤣😂🤣 as it means travelling to my least favourite station (have to change at Birmingham New Street🙈) AND I have to travel on my least favourite train line (Cross Country🤦‍♀️)…….so I’ll actually be glad when it’s Wednesday and I’m back in York🙄 ….but the fun we’ll have will far surpass the trauma of the journey……

Dawn was meeting me at Birmingham International but in the meantime I had to fight my way out of the train at Birmingham onto a platform that was heaving……..then heard someone say it was Cheltenham races today😱…..but luckily there was a nice guard who told me where to get my final train and showed me to the lift😇

Dawn was there ready and waiting for me and we made our way to the hotel to be met by the sight of Nigel, followed by Agnes who had brought me Yorkshire tea!!, Tommy and Joyce and Paul from Liverpool soon joined the party. Mary Marshall was also there (social worker) along with a new playmate, Kath from Ireland. Dr Julie Christie and Colm Cunningham, Director of Hammonds Care Dementia Centre had flown over from Australia……….


New playmate, Kathy, from Ireland with Nigel.

Once everyone had arrived and after a cuppa Agnes started off by welcoming us


Col Cunningham (Director of Hammon Care along with Agnes

Hammond care are very good at consulting people with dementia AND putting the outcomes into action….Agnes has worked with them for many years.

We went through the tables and just introduced ourselves. Mary then went onto the main aim of the day – Introduction to design and why it matters…….

Mary showed slides of what she teaches professionals for us to chip in – it focuses on older people – most of the time we don’t think about the design of buildings until things go wrong……confusion between ageing impairments and good design for people with dementia. Most people with dementia are old and dementia adds to the physical and sensory challenges that come with age.

So many were things we already knew, as we knew we would, but Mary spoke of lungs working less – in a stuffy room this can cause people get to sleepy, but people with dementia decline even more….

The biggest revelation was around the use of air fresheners! Don’t use air fresheners as they contain harmful agents for people with breathing difficulties – open windows. The automatic air fresheners provide lung problems. Often windows won’t open in hospitals and care home but If the rooms in care homes and hospital are continually hot, which they often are, it can lead to dehydration…… Gardens are the most underused area of care homes – as it’s too much hassle. Research has shown the main reasons care staff for not allowing people with dementia to go out is the weather……..🤦‍♀️🙈

Mary spoke of colour – Much easier as you age to see red, orange and yellow than blue and green. Lots of tosh talk about colour – many think orange will help people eat and blue help people relax in living room – no research to prove this. Dispense with that tosh and consider colours have to be vibrant. Contrast is the key – if you want people to see something it has to be in a contrasted colour.

So many interesting things came up – too many for me to keep up with – but then it was time for a breather and a nice cuppa tea…..


Cuppa tea time…Nigel, Tommy, Agnes, Paul, Kathy, me and Joyce….

Back in then to continue with Mary talking about design of everyday areas – as the hours passed some key themes kept emerging…….

Firstly , We need to join forces with the other disability groups to make places accessible to many. British standards INstitute are being re written in the next 4 years and we must make it include cognitive issues as it currently deals with wheelchair access and visual impairment. The british standard is built into regulations so now is prime time to influence for building regulations. We don’t want new building that still aren’t right when built.

Most cities have ‘disability access panels’ – it’s mainly about wheelchairs and vision impairment – we have to get cognitive and perceptual issues considered. They are a powerful group. Many disabilities rights group are wary of people with dementia…..so we have to get ourselves on those panels, as they believe we don’t have the ability. It’s joining forces with other disability rights groups……..many disability groups are established and may not want to see us piggybacking onto their organisation. But our role is to show them the benefit of having us connected.

Secondly, We need to get Architectural schools to allow us to speak at their conferences. We need disability not to be seen as a burden but celebrating what we can do and be enabled to do that and design can be the starting point. A new bunch of students to influence…

The third action could be to Focus on one major hotel change that we frequently use for conferences. If we change one hotel group in design that holds conferences……others will follow when they see the financial benefit – we spoke lots of the grey and dementia pound.. We just need one to listen and change and others will follow.

A group of like minded people can change the world” – said Nigel…..

Many people said to the Dementia Centre:

you can’t have a design school for people with dementia’

Well we had it today. We’ve redefined what we thought we were here For today as we’ve taken it into the Political and Rights arena.


Great day together….

We were all exhausted by the end and I went back to my room for a quiet half hour before a final supper together. I said goodbye to everyone then as my taxi is booked for 05.30 in the morning to get me to York…..🙈

More can be found about Hammond Care at

www.dementiacentre.com

and it also has a wonderful video of Agnes….


Lovely goody bag with 2 books on design…….

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

1 thought on “Design School for people with dementia….

  1. Hello Wendy I do agree that we can learn so much from nature, having lost a very dear brother and sister at a young age in recent years it was indeed nature that helped me come to terms with it. Just walking out in the countryside just letting nature take over your thoughts and in its way healing you helped so much. Nature doesn’t answer back, it replenishes.

    Liked by 1 person

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