It never ceases to amaze me how some organisers find it acceptable not to pay all our expenses………
Some are totally wonderful. Not only do they support us in every way possible, by asking what help we need, but they detail what will be paid for and ask if anything else is needed. Some offer to collect and drop back home if local. Some even pay expenses on the day!
However, there are those with little understanding of what attending an event can entail. That makes me feel like a tick box and used…….😔
Many people with dementia and supporters are more than happy to speak at events, to staff, to organisations, etc, etc……but if our expenses are not in the budget please don’t ask us.
Many people with dementia and supporters are not in work and even if they are, surely it’s only courteous and expected that if you ask someone to take the trouble to attend and speak, then you ensure they’re not out of pocket?
Travel tickets are one expense but so also are taxis if needed and we still have to eat if it’s an overnight or if it takes a whole day with travelling. Many offer to meet us at the station, or suggest we get a taxi or provide a good walking map.
It’s embarrasing enough having to ask someone to book train tickets, so please don’t embarrass me further by making me feel bad about asking for my taxi fare to be refunded or anything else I reasonably claim. And after the event please don’t tell me taxi fares aren’t’ covered as how else am I suppose to get from my house to the station when public transport doesn’t exist?
I put lots of planning and preparation into any event I’m asked to speak at so please return the favour.
I rely on the integrity of others to repay any expenses claimed and havn’t a clue whether they are or not they are as once I’ve submitted I simply forget so if you’ve been my contact person it would be really useful to track whether I have actually been repaid, and some do this as a matter of course, which is wonderful.
I’m more than happy to attend and speak, but please don’t let me be out of pocket.
There’s a guide on the DEEP web site for including people with dementia in the second list “Involving people with dementia at conferences and events”…..the last paragraph is equally as important as the first and everything in between.
Sorry couldn’t make it appear as a link to the guide itself……end of rant….