Dementia Diaries meet up – Final Day…….

Following on from yesterdays blog…..After breakfast, the final day. And it was another glorious day so time for one last photo of the grounds

Yesterday we started off with a song, today it was Steve from Stockport with a poem……beautiful

We had a recap of yesterday. We did say, they could make anything up as we were all looking puzzled trying to think what we’d said…..🤣

We spoke about how we can promote dementia diaries in the media and we all came up with our own personal contacts that might be willing. The funders will be able to give us loads of help with the media…
Raw emotions that we report on can make a big impact on the media for stories in the news, especially our feelings around the infamous stupid headlines that so often appear…

We then went onto to do some planning for the funders meeting as they were due to arrive later in the morning.

So what happens next? All the info from the last 2 days will be written up. Rachel will come up with a draft pack re guidelines for recorders and a joiners pack.

After a quick cuppa, the last of the sessions before lunch and hometime was with the funders. But first, we couldn’t resist a final opportunity to get a piccie of the wonderul ‘Class of 2017’

Not just any old funders, but Comic Relief and The Big Lottery. We all had questions……but first……..Paul and Tommy sang a song….
We all then went round and said 3 ‘golden nuggets’ about ourselves. I finished mine by saying “So a diagnosis certainly isn’t the end and everyone before you demonstrates that.”

We then all went round and told the funders why Dementia Diaries is important to us. Mine was:

“It enables us to give our immediate response to contentious issues in the news before the moment is lost and before it escapes our memory.

We finally had 3 questions for them and mine was:

“What do you want to get out of it – why do you want to support us?”

Rachel and Michael both gave their responses – They want decision makers influenced, to hear positive stuff as well as negative, To both of them challenging the stigma is sooo important which was wonderful to hear. To show it’s not all doom and gloom as we’ve proved to them that there’s so much more to dementia – perfect brownie point answers.😊

There will be a big launch in the next few months, so I’ll be sure to do another blog when it happens but as for the last couple of days……..
Philly and Rachel got it right and were amazing facilitators. They got so much perfect over the last 2 days which made all this possible for us, especially regarding the travel detail. Without their thought and devotion to getting it right, we wouldn’t have had a chance of getting to events like this safely and confidently.

BIG thankyou to them – it was a blast😘

You can hear our voices and see our words on the web site. The new improved version and content will start appearing in the next month or so……

http://dementiadiaries.org/

A drawing from Tommy finished the day and seems a great way to finish this blog.

people with dementia often feel like this inside…
But if you turn the image round…..with support and encouragement, can feel like this…

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

5 thoughts on “Dementia Diaries meet up – Final Day…….

  1. It sounds as if this was a very worthwhile few days Wendy. The people running it seem to know how to communicate effectively which is perfect. Being listened to and respected, whether or not we have dementia, is so important. The leaders seem to have that just right. It will be very interesting to know what happens eventually and what they do with their findings. So glad you went and shared the experience with us. xx

    Liked by 1 person

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