Several months ago, I went to my Gp asking him to refer me to physiotherapy to see if they could help with my wobble walk….
I could self refer but you had to do it by phone……I find using the phone difficult. I did think that standing next to Sarah, my daughter, while she rang for me would be ok……..WRONG……they needed me to be able to speak on the phone……..the only alternative was to go see my Gp and get him to refer me – Me thinks that process could be streamlined to make better use of time……….😔
Anyway, off I trundled to my Gp with the innocent request to be referred to the physio department. While I was there he decided to check my blood pressure – which was perfect. But alarm bells obviously rang in his head when he saw all the bruises on my arm and unbeknown to me I suddenly get a call from the Falls nurse…….🙄
I’m sure I must have written a blog about that experience as I remember it not being a particularly good encounter – now I’ve searched through, that visit was at the beginning of November.
The district nurse said she would refer me to physio……
Just before Christmas – I think – or it might have been just after, I had another phone message from an Occupational therapist asking to visit.
Remember – I don’t use the phone – the Gp assured me he’d get people to write to me….but no, message after message left and me waiting for Sarah to have time to pop over to sort it out for me.
Anyway, Occupational therapist came and although we went through same depressing beginning to conversation, things perked up when she finally began to talk to me instead of Sarah. Once we’d got over that hurdle, the visit went really well and she scored a shed full of brownie points by understanding and listening.She even organised for another handrail up the stairs as she wasn’t convinced I wouldn’t fall down with just the one. Those people have even contacted me by email to come this week. So you can see why I liked her and I was really hopeful for the future when I might need her again, only to be told that she was simply covering someone else’s area – so sadly, she wouldn’t be the OT I would have in the future, but hopefully her colleague will be just as tuned in.
What about the physio, I asked……..?
The OT said she would refer me to the physio……..
Well finally, this week I had a visit from the physio. The person I wanted originally……only took since last Autumn……I even had the appointment come by post – brownie point
But had to ring and confirm the appointment🙄 – brownie point deducted……..
She had a nice smiley face so I instantly warmed to her. After watching me wobble, she explained to me what Gait Ataxia is and why I have it. Once she explained it to me, it all became clear. I can cope with things when I understand them and now I understand it. There is research going on into Gait and Dementia, but once again, it’s not in my area😔
There was a very funny moment when she tried to get me to walk heel first – sounds simple, doesn’t it? Very difficult and wobble took over.
Don’t get me wrong, I can still get about fine, just in my own
wobble way. I’m worse when I get up the night and first thing in the morning – very unco-ordinated legs then….
Obviously there’s no cure and it will get worse, but she explained how I can help myself. How using 2 sticks will help keep me on the straight and narrow in the future if I don’t feel like using 2 now. I pointed out that having 2 now means you need a 3rd arm to carry any shopping….
I wasn’t too keen on the suggestion of getting the 4 wheeled thingy with breaks……😳 only to try indoors 😱…….but it’s taken me so long to get to see someone that I thought it best not to say no and at least I will have it when I need it and, like my stick, I can get use to the idea…….. by staring at it……….😊