CAREGIVERSPRO-MMD – website design involvement..

Last Wednesday I had a visit from Rosie Dunn – a Postdoctoral Research Assistant from Hull University.

I first met Rosie back in September when she was doing some preparatory research for a randomised trial due to start in early 2017 It’s a European Commission funded piece of research and Humber is the only site taking part in Britain, which makes a nice welcome change.

The aim of this visit was for Rosie to show me a draft version of the web site and for me to give her feedback.

The main aim of the website, which is called, CAREGIVERSPRO-MMD, is for people with dementia and family and friends to use as a social networking forum. It’s a collaborative study between Hull University, and various organisations in France, Spain, Italy, and Greece.
The web site has been designed in Spain so much of it was still in Spanish 😳 and we found that the translation into English still had a way to go. However, that was the point of this visit – to give feedback on the good and bad points.

More and more people are using technology and social web sites, so this seems like a good project. Participants will be local to the Hull and East Yorkshire – yehh! and each will receive a tablet. There will be people with dementia as well as supporters. Some will have access to the social media site and some will simply get the tablet to use as they wish😳
The site will work a tad like social media already in existence, so you will request friends and there will be a chat café; reminder function, and much much more.

The web site still has a long way to go as the font and colour contrast needs amending in many areas.

I gave Rosie lots of practical solutions for improvements and can’t wait to see the updated version.

The study is being launched at the beginning of next year and Rosie has asked if I’d give a ramble at the launch on how I use technology.

The most amazing part of her visit was seeing a photo of her cat who I reckon is Billys twin!!

AND we couldn’t resist taking a selfie once we’d finished……


About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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