The INQUIRE project……..

On Friday I had a visit at home from a researcher, Susan Kirkpatrick, of the Health Experience research Group at Oxford University
Her study is entitled INQUIRE – and they’re interviewing”
‘patients and the public who have used the internet to express their views about healthcare or have read other people’s comments”

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Well as most of you know, I’ve done this on the odd zillion occasions through my blog and social media…..so I think I might qualify to participate🤔

Susan had spent the last couple of days interviewing people in the north and now it was my turn…..she came armed with video camera …….

She was there to ask me why do I do what I do; whether I think it has any impact; whether it’s enabled others to feel empowered to do the same; did I intend it to reach others etc etc.
Her main topic of discussion focused around my experience at Hull Royal.

Their aim is to help health professionals to see how they could use on line data in a more productive way – they’ll be able to look at the web site to hear views of people and learn from them – what a brilliant idea if it’s promoted across healthcare professionals…..

We spoke about my dreadful experience at Hull royal at the beginning of the year – Susan asked if I had thought of complaining on line in any other way, maybe through NHS Choices or patient opinion? Well, no because I use my blog and Twitter to reach more people……I said how I’d complained to PALs at the hospital itself, had a meeting and been given false promises, so that was just a tick box exercise by the hospital – pointless…..
I had been given the opportunity to have another appointment, but simply through meeting someone from the hospital and them taking my case further, but not everyone is as fortunate as me – that itself is starting to go pear shaped, but more of that in a blog later in the week about an MRI scan I’ve just had…….

Susan asked if I thought I gave other people confidence to speak out – well people emailed me saying they’d decided that if I could do it, they too could express their views, so maybe I just highlighted that bad practise shouldn’t be accepted, after all, if we don’t speak out, how are people to know what’s going on?

I said it was important to congratulate good practice too – for example, when I sang the praises of my dentist, it’s just unfortunate that most of my experiences have been negative ones.

It’s very thought provoking research which, if the outcome is accessed as expected, will be of great value to health professionals, afterall, people do things without thinking sometimes due to time restraints, having a bad day or simply not thinking. This shows them how they make us, as patents, feel and how simple changes can make all the difference ……..like I’m always saying, a smiley face doesn’t cost anything……as demonstrated by Susan on the piccie below!

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You can find out more about the project from their web site

http://healthtalk.org/

Or follow them on Twitter
@healthtalkorg

Any one out there is also interested in giving Susan your opinions on using social media to express views about the healthcare or who has read other people’s comments online, like mine, please email me on wendy7713@icloud.com and I’ll pass your details onto Susan who will then contact you. Or contact Susan direct on the detail above on the flyer…..

To contribute would lead to healthcare professionals having access to patients opinions, so please help if you can – if we don’t tell them how they make us feel how can they put things right…….?

All opinions are valuable opinions……

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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