Meeting with Postdoctoral Research Assistant…..

Yesterday I wrote about my morning visitors, and today it’s the turn of my afternoon visitors.

Cathryn Hart, Assistant Director Research & Development, Humber NHS Foundation Trust, had contacted me to ask if I would meet with her and a Rosie Dunn, a Postdoctoral Research Assistant from Hull University. I do loads with Cathryn and her wonderful team as I’m their Join Dementia Research Champion😊

Rosie is doing some preparatory research for a randomised trial due to start in early 2017 It’s a European Commission funded piece of research and Humber is the only site taking part in Britain, which makes a nice welcome change 👍

The Research is “CaregiversPro-MMD (Mild to Moderate Dementia), which is an online application/website that has been designed for people with dementia, their families and healthcare professionals. It potentially has some amazing original features which I won’t reveal at the mo……… The UK are working alongside Spain France Italy and Greece.

Rosie wanted to meet to talk more about the research and a workshop she’d be holding in January.

The afternoon was just as nice as the morning and it had been a lovely sunny day spent at home for a change. I’d been for a nice walk wobble around the village in between visitors.

Cathryn and Rosie arrived on time and Cathryn was keen to see the changes I’ve made to my house as she’d read about them in my blog.
Amazingly, neither wanted a cuppa tea………..well everyone has their faults, but I’ll forgive them this once………We then sat and Rosie explained about her role in the project.

Everyone who takes part will get a touch screen tablet 😳– it’s randomised, so some will have access to the web site, others will simply having access to the web.

It will measure the affect on quality of life, activities in the home – how it’s affecting the mood etc.

The content is still undergoing work. . Healthcare professionals will hopefully be involved with being able to add educational material

It’s target audience is for those with MCI or mild to moderate dementia and not necessarily having a diagnosis.

Rosie asked whether I’d like to evaluate the app they’re going to use – mmmm, I had to think for all of a nano second to answer that one…..

There will be a National Workshop on 27th January in Hull which will be the launch of the research – a full day with many eminent speakers. Rosie then asked if I would I be willing to talk at the event about my experiences of using social technology – again, a nano second passed before replying…………

It sounds a very exciting bit of research and very different to the norm so I’m pleased to be involved. Rosie is going to let me have a look through the version about to be completed to comment on, which is even more appropriate – they involved people with the design from the start – perfect!
Really looking forward to be part of a project that Hull is leading on – makes such a change for our region and is a great opportunity to showcase the stars we have here.

Dr Emma Wolverson , an academic researcher at the University of Hull and also Clinical Psychologist at Humber NHS Foundation Trust is chief investigator for the UK – and her book happened to be on my table as we spoke!

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I’d been asked by the publishers to review the book and my little comment is on the back cover…..

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About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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