IDEAL – Improving Dementia Enhancing Active Life
Tuesday saw a visit from Holly from the York Research team. The IDEAL project is a study I’m taking part in with Gemma and it was time for our second visit, 1 year after the first.
The idea behind the study is looking at how people live well with memory problems – what makes it possible to live well and what causes hassle – getting a whole family view – over a 3 year period.
It covers everything around what is living well – relationships and day to day activities – self esteem – absolutely anything and everything.
1 Year on, me and Gemma will have another 2 visits, each lasting about 2 hours each. It’s being run by the University of Exeter. The only hilarious thing about this is that I have no recollection of the first visit – luckily Gemma does! I thought I might remember something when I saw Holly, but sadly I didn’t even recognise her, which is very sad. Apparently Holly came to my house in York last time🙄, which you’d think I’d remember, especially as the interview lasted so long…….very funny – you have to laugh or you’d cry……😊
This time, there was a new consent form around Data linkage. They want to link my answers to my NHS records – my name isn’t linked as you simply have a participant number. I think this is a brilliant idea as it allows researchers to gain valuable information to add substance to their study. For example, do people who don’t live well access their Gp more often? Do people who live well have access to peer support groups and see their Gp less – therefore providing evidence for the need for more peer support groups. Just one example of the potential use of the information.
Sooooo, once we’d signed all the usual consent forms, we went into separate rooms. Gemma completed hers on her own and Holly took me through a mountain of questions but started off with the basic memory test
Questions were about my background, health, well being, interests and memory. One question was, ‘What other research projects have you been involved with….?’ – 😳 My response was …..’lots’……..but I could only remember 2………….😂
Holly is due to come again in a couple of weeks. Hopefully I’ll remember her next time……🙄
More can be found about this wonderful study on their web site:
And of course, if you’re interested in taking part in any research, then you can register on