Guest Poem by Alison Bolus

Alison has also been diagnosed with Alzheimer’s. She is 56 years young and lives with her husband in Surrey. Her poem captures our daily struggles perfectly…..

Words were my friends, my tools, my anchor.

I used them to explain, to justify themselves.

I delighted in them. Rarely were they troublesome, argumentative: squaring up to me.

No picking a fight, no challenges to my carefully selected members of the alphabet to take their places in a sentence.

They didn’t pretend to be something they were not.

They didn’t lie about their importance.

They were there to be used and to delight….

But nowadays my brain (such as it is) lets me down, and with it my raison d’etre

No playing about.

No fun.

Just focusing on getting the letters in the right place, and the sentences in the right place and trying not to duplicate anything.

But now it is so hard…and it makes me so sad.

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

3 thoughts on “Guest Poem by Alison Bolus

  1. Hi Wendy and Alison. Thank you for sharing this, it’s a really powerful poem. I’m doing an arts project about living with Dementia which the two of you may be interested in. There’s more information about me and the project on my blog I’d love to hear what you think. Wendy, we met once at the University of Leeds. It would be lovely to meet you again again at some point! Delia

    Liked by 1 person

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