My ramblings to help someone newly diagnosed with dementia…

Don’t panic – there are so many things you or your supporter can do to help make life easier

Expect to have challenges. Always have a plan B for when for things go wrong

Making plans now will mean your loved ones won’t have to make those hard emotional decisions needed later down the line

Encourage others to support you to find new ways of doing things rather than do them for you and find a local DEEP Peer support group.

Never be embarrassed in telling people you have dementia. It’s a complex brain disease so what reason have we to be embarrassed?

Take part in research of any kind – social, technological and clinical – as without willing volunteers, researchers won’t be able to test their new theories on how to care, prevent or cure ………It also makes you feel valued and good about yourself….

Inform family and friends of the importance of not excluding you and of situations you find difficult. They could help you to find new ways.

Adapt to new ways of living. A diagnosis of dementia is all about adapting. If you can accept this, it makes it easier to accept when you can no longer do something as you did it before – you simply find a new way to do it……

Tomorrow it will be my ramblings for those supporting someone with dementia – remember these are just my own personal thoughts…….

I love the images you can find via Google........
I love the images you can find via Google……..

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

4 thoughts on “My ramblings to help someone newly diagnosed with dementia…

  1. I shall keep this and may be able to use it with some of the people I befriend through the Alzheimer’s Society. It’s also useful on a personal basis, as both my parents had dementia and it’s an ongoing worry that I may develop it. Thank you for writing it. Best wishes. x

    Liked by 1 person

  2. Thank you Wendy for these ideas. As someone else who lives in Yorkshire, works full time in the NHS and has recently been diagnosed with young onset Alzheimer’s I find I am constantly worrying about the future. I’ve already had to stop driving and wonder what will happen when someone (because it won’t be me) decides it’s time for me to stop working as well.

    Scary. Anyhow, thanks again.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.