I don’t ever remember a night where I didn’t wake up at some point but I always felt refreshed and felt as though I’d had enough sleep. I always use to read a chapter of my book and then as soon as my head hit the pillow I was fast asleep until 4 or 5 o’clock….I always use to have blocks of solid sleep……..
Not any more – another change since dementia has entered my life and something that appears to be getting worse. It can take me hours to get to sleep. It’s not even that my mind is working overtime. I’m relaxed, not restless….I’ve always been able to switch off and relax but now it’s as though I’ve closed my eyelids but my eyes are wide awake behind them even though the rest of me is tired. It’s bizarre…..If I sleep, I sleep for an hour or sometimes even less and then wake up. I have very vivid dreams because I’m sleeping so lightly. If this had happened sooner I would have put it down to a possible side effect of the trial drugs I’m taking but there doesn’t appear to be any correlation time wise – although I’ll obviously tell the team my sleep is getting worse when I see them next.
There is much literature on sleep deprivation and dementia but I havn’t been able to find the simple answer of ‘why’ or what I can do.
I’m physically active – my Fitbit tells me I’m doing far more than the recommended 10,000 steps a day. I’m mentally active as I’m so busy here there and everywhere. So why is sleep such an issue? Sometimes I grind to a halt through sheer exhaustion but then just plough on regardless.
I’ve tried relaxation methods of various sorts but this seems related to the dementia.
I’d love to be part of a trial looking at sleep and dementia but havn’t found one, so if anyone knows of anything please let me know.
I would love to sleep through the night – or even for several hours……If anyone has a magic remedy for sleeping through the night , please share with me……