Join Dementia Research is 1 year old!

Last week, Join Dementia Research, the database to match researchers with willing volunteers, was 1 year old.

It seems ages since the launch and whilst I don’t remember all the detail, what I do remember is being down in London and watching the live database. As those of us involved were being interviewed on radio and television, you could see the impact it was having on the database. The spikes of people logging on and registering was amazing to watch.

Without willing volunteers it’s nigh on impossible for researchers to prove one way or another whether a drug, treatment or programme of activity can work. That’s why it’s so vital for people to volunteer, especially those themselves with dementia. It’s not all about drugs trials, there are social intervention projects as well and both are equally important.

Kate Liptrot, Deputy news editor and health journalist for The Press newspaper published an article on me on the day. She interviewed me a year or so ago about living with dementia so it was good that she followed it up last week promoting research.

If you’re interesting you can read it here:

http://www.yorkpress.co.uk/news/14298996._Being_involved_in_research_

makes_me_feel_valued___says_York_woman_with_Alzheimer_s/?ref=rss

If you know anyone with dementia or would like to volunteer yourself go to:

https://www.joindementiaresearch.nihr.ac.uk/

You never know when you might be grateful for all those willing volunteers……..

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About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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