Another great opportunity with the Alzhiemer Society

I can’t stress enough how wonderful the Alzheimer’s society is for ‘including’ people affected by dementia. Admittedly I volunteer for everything but they also offer me and many people like me, so many opportunities to be ‘included’ in the society. Last Wednesday was just such a day…..

The tube was a problem again – obviously last week was not a week I should have been travelling……I would normally have walked as it was a lovely sunny day but when I got to the tube platform the kind man announced ‘severe’ delays on the circle line……I asked a ‘nice’ man who said ‘Gerroff at Aldgate and walk’…………and a train duly pulled in for Aldgate so I thought hey ho, how hard can it be and I’ve got my trusty map book……Turned out to be a pleasant walk but it meant I just got there on time instead of a nice 30 mins to play with……..

I’d been emailed asking if I’d like the opportunity to be Programme Advisor on the User Involvement Programme Board. Hilary Doxford (wonderful friend who also has dementia) was stepping down after her years stint and they wanted to know if I’d like to take her place. Well, obviously I thought about it long and hard for all of 2 seconds and said yes.
I met Gaynor Smith – Involvement Manager – and Hilary for lunch before the meeting for a catch up and hand over. It was nice to see Hilary again as the last time we’d met was at the launch of the Alzheimers Society Guidelines for Employers, where we spoke. We’d exchanged ideas about alternative treatments at that meeting and I wanted to rack her brain for further information, but that’s probably another blog…….however, in all my haste to take in everything else I forgot to have that conversation so it will have to wait for another time…….
As usual my new team of play mates were all wonderful and I’m sure I’m going to have lots of interesting conversations.
The whole ethos behind The Alzhiemers society strategy revolves around inclusivity of those affected by dementia and they clearly do it so well. The idea of this board is to ensure it happens, how it happens, and measuring success. I can’t sing their praises enough – as I’ve said before, they’re all my heroes.
Hope you’re reading this whilst having a nice lunch in the sunshine Matt or is that too much to ask?!
If you’d like to get involved with the Alzheimer’s society, there are lots of opportunities – click on the link to find out more.

http://www.alzheimers.org.uk/site/scripts/documents.php?categoryID=200123

or to be involved in as a Research Network Volunteer, click below:

http://www.alzheimers.org.uk/site/scripts/documents.php?categoryID=200425

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About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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