Being involved with the Alzheimer’s Society

The staff at the Alzheimer’s Society always make me feel valued and ‘include’ me in whatever opportunities arise. Yesterday I was back down in London at my first meeting regarding their Advanced Dementia Project.
Before the meeting I’d arranged to have a cuppa with the lovely Katie Bennett – one of the Press Officers there for a catch up and a natter. I was a tad early but the wonderful girls on reception sorted me out with wifi access so I was sorted. Once Katie arrived she took me to meet all the staff in the office which was lovely – I’ve never met such a nice bunch of people. We both said we have meetings at 2 so arranged to meet before then only to realise we were both going to the same meeting!!
The reason I offered to be involved in this project was purely selfish. I need policies and procedures to be perfect for when I get to that later stage -ha! After the project has been completed – around 2017 – there will be recommendations to government, local authorities, health services and service providers on what may need changing and how to ensure laws etc are implemented correctly, effectively and consistently.

While I was waiting the wonderful Matt Murray popped over to say hello – he looks after all us research network volunteers.
Can’t think of a better way to use my time than have an impact on future care of people in the late stages of dementia…..



About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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