“Twittering” Hour

My new found skill of ‘twittering’ gets put to the ultimate test next week.

As you may know, I’m passionate about research and next week I get to combine promoting research with my new found skill.

As part of the National Institute for Health Research’s ‘OK to Ask Campaign’ this year (which seeks to encourage patients and the public to ask about getting involved in research), and in the run up to International Clinical Trials Day on 20th May, they are running ‘OK to Ask Hour’ on Twitter. They’ve been running a series of 1 hour long  #oktoask session via Twitter over the last few weeks and this week was the turn of ‘strokes’ . Next week it’s the turn of dementia.

I’m part of the dementia panel on Weds 6th May 8-9pm. The panel consists of a specialty representative, a research nurse,charity representative and patient representative, who will answer the public’s questions. For the dementia hour, they are:
• Dr Adam Gordon – Consultant & Honorary Associate Professor in Medicine of Older People in Nottingham, UK. Honorary Secretary of the British Geriatrics Society
• Nichola Verstraelen, Lead Dementia Research Nurse – Award winners in clinical research nursing dementia. Team Lancashire – Nursing Times
• Dr Laura Phipps, Science Communications Manager  – Alzheimer’s Research UK
and me as the patient representative

Using the hashtag #oktoaskhour we will encourage patients, carers and the public to ask questions about clinical research into dementia – not sure I understand what that sentence means but I’m sure all will become clear -ha!

It will be interesting to see the response, if any, from the public. I’m not sure how accessible Twitter is to those targeted and maybe it’s a new concept or it’s certainly new to me but very exciting:)  It will be well publicised on Twitter so let’s see how it goes – very excited.
Just hope I don’t get my twitters muddled…..
Also, take a look at the new Join Dementia Research you tube video

https://m.youtube.com/watch?v=BRbpXJ5WCLI

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About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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