Following on from yesterday’s part 1 blog about the ways I’ve found to adapt to living with dementia:
When I wanted a new camera, I thought I wanted one that could do everything as I love photography (even though I’m not that good at it!) but when I went to try some out it became apparent that too many options fuddled my brain and I just got confused. So I kept trying less and less sophisticated models until I found one I was comfortable with. Found one with a user-friendly menu but had lots of easy to use extras – perfect!
I love reading but can’t follow novels anymore so now I simply read short stories that can be finished at one sitting – perfect!
I can no longer drive – so I take public transport, cycle (as long as I remember to get off when turning right!) or walk – I don’t make it an issue.
The biggest sadness for me is not being able to run any more. My brain and legs no longer appear to communicate when I have to change direction – brain goes one way, legs go the other, resulting in me falling flat on my face………I was never very fast or ran amazing distances but I loved it and ran most days. This has left a huge hole that I need to fill. On March 30th the wonderful Susie Hewer ran a marathon in Dover for me in the most appalling weather. You can see the detail at:
We know each other through Join Dementia Research and she knows how much I loved running. Susie has given herself the amazing challenge of running 60 marathons by the time she’s 60 in 2017. She ran her first at the age of 48! In a few weeks time she is running 3 marathons in 4 days, the last of which is her 10th London marathon. She has so far raised £35,000 for dementia research – a truly inspiring, amazing woman.
I got side tracked telling you about Susie – I need to find something to fill the gap left by running. I have always been a fitness freak for as long as I can remember (not that it did my brain any good -ha!) I still walk lots – it never ceases to amaze my daughters how I often walk when a bus will do. I haven’t found anything else yet to take the place of running though.
Finally, accept adaptations don’t fight them – that goes for family and friends as well.