Filming to promote Join Dementia Research

Last Tuesday Mark Rawson (Communications officer for NIHR Clinical Research Network) came to see me to film a quick interview around the part I played in the Join Dementia Research Launch day and research in general. I love meeting new people who are involved with promoting dementia research and Mark was no exception to this. He’s involved in communications around research in general and not just about dementia.

It’s always so refreshing to have young people involved. Each one has always said how it’s opened their minds to dementia and made them think differently which can only be a good thing. We even talked about Twitter …..I wouldn’t have been having a conversation with anyone about Twitter a month ago!!
As always, he’d sent me the questions he wanted to ask me – always a good move.
He asked me first how I’d become involved with Join Dementia research. I told the story again of how I’d gone looking for research to be involved in once I’d been diagnosed and how difficult I’d found it to navigate the many systems on the web. Once I’d seen the request for volunteers to promote Join Dementia Research, I’d jumped at the chance as here was the obvious solution to the issue. I felt quite honoured to be involved in such a milestone in dementia research. This new ‘one stop shop’ was about to revolutionise the way volunteers are linked to researchers.
More than a 1000 people signed up on the launch day which was brill and my home county of Yorkshire saw some of the highest figures – yeeeh! However, there’s a need for periodical campaigns to remind people of the existence of Join Dementia Research – hence this reminder blog! and to remind people of it’s aims – to bring together willing volunteers and researchers. Ploughing extra money into research will have no valuable return if there aren’t volunteers to try out their new theories.

Remember, although people living with dementia are valuable volunteers, people who are carers can also register, as can healthy volunteers and carers can register loved ones. All are desperately needed in the fight to find not only the elusive cure but also to take part in research looking into the best ways to care for those with dementia, best ways of living well with dementia, not to mention research into the prevention of the disease.
You never know when you may be grateful for volunteers like ourselves.

I always find it hilarious when they want to do a second shoot, answering the same questions as I know full well my response will be in totally different words no matter how hard I try……….ha!

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About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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