Fingers crossed day!

Today, I’m due to get my first delivery of the trial drugs I spoke about in a previous blog. I’ll hopefully be taking Minocycline, which is an antibiotic currently used for the treatment of acne. The aim of the trial is to determine whether it might be of benefit in Alzheimer’s disease by slowing the expected rate of deterioration.

‘Inflammation of the brain is believed to play an important role in Alzheimer’s disease and it’s progression. Minocycline has been shown to have an anti-inflammatory effect in other research and is a potential future treatment for Alzheimer’s disease.’

This type of trial is becoming the way forward – by trialling drugs, already licensed for use of another kind to treat a different kind of condition. Developing brand new drugs cost millions and takes years, so using drugs already in use and testing them for other uses seems a very good use of time and funding.

I need your help! I said at the beginning that ‘I’ll hopefully’ be taking the drug……….. While I’ve categorically told them I don’t want the placebo. I’m not convinced they’ve listened. So to give me an even better chance of getting the real thing, can you all help me by crossing your fingers and toes in the hope that I don’t get the placebo!

Power of multi-people positive thinking –ha! And even if it doesn’t work, I should be free of acne!

What have I got to lose?
What have I got to lose?

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

3 thoughts on “Fingers crossed day!

  1. I agree take every opportunity of a drug rial, Christopher missed one by a whiska a few months ago, the criteria was so narrow , the consultant said he might have been OK the next day, anyway we didn’t have to live with his pee turning blue !! Driving down a road this afternoon a) Christopher remembered something had happened on that road and b) when we then drove past where we had seen a massive barn on fire a few months ago he remembered it and pointed out the burnt out barn, this is amazing !! something different every day !


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